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    • Trekkie Monster

      Check all advice with your medical team! Plus, quoting medical sources (HON code requirement)   08/25/2015

      Here at Ostomyland we are a patient run community - meaning we have learnt what we know as a result of being the patient and 99% of our members have got no medical qualifications whatsoever, and so any support replies are usually based on personal experience or friends/family-members personal experience. As a result Ostomyland strongly recommend that all members should check the accuracy of any support/health advice they have been given here with a member of their own medical team (GP, ET/Stoma Nurse/ Surgeon etc) BEFORE acting on it. This is for your own safety, as all our bodies are very different, and what works for one might not for the other, and for another it might even be dangerous! Ostomyland is not responsible for the content of the posts made, each member is responsible for their own posts. So if you ever did get any duff advice (unlikely, but could happen one day....) then blame the person who posted the message, and not Ostomyland. We are proud to be HON code certified and work very hard to meet the requirements of their principles. As such, and as requested under principle 4 of the HON code guidelines we must ask that members of the forums please quote sources for any medical information they give which is not based on personal experience.   Thanks.
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DuchessGigi

Double Baggers Support Group Facebook

1 post in this topic

Posted (edited)

I am writing to ask if you could publicise our new group on Facebook. We are a group of people who have for many different reasons ended up with 2 or more ostomy bags often because of cancer, nerve damage or trauma. We are raising awareness of urostomy users and people with 2 or more Ostomies. We have named ourselves Double Baggers. Both Urostomates and people with multiple stomas as groups are little known and face unique medical and social issues. Rachel Jury also writes a blog called Rocking2Stomas where she discusses all issues surrounding having two bags. We are also promoting having better body image in an age where women with perfect bodies get body shamed. Men and women who have ostomy bags often feel ashamed of their bodies we are using the analogy that our scars are part of our road map of life and we should not be ashamed of them. We see ourselves as survivors of our diseases and are promoting having a good body image despite having to wear ostomy bags or/and scars.
We would really appreciate if you would make our grour known to your members we would greatly appreciate it. We are starting a campaign to raise these issues and need input from as many double estimates and Urostomates as possible. We are based in the Uk and have members from all over the world. We have only been live as a group for a week and have 62 members already. Please come and have a look and tell us what you think.
 
Thank you for reading this message.
Louise Pearce
 
Edited by DuchessGigi

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