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    • Trekkie Monster

      Check all advice with your medical team! Plus, quoting medical sources (HON code requirement)   08/25/2015

      Here at Ostomyland we are a patient run community - meaning we have learnt what we know as a result of being the patient and 99% of our members have got no medical qualifications whatsoever, and so any support replies are usually based on personal experience or friends/family-members personal experience. As a result Ostomyland strongly recommend that all members should check the accuracy of any support/health advice they have been given here with a member of their own medical team (GP, ET/Stoma Nurse/ Surgeon etc) BEFORE acting on it. This is for your own safety, as all our bodies are very different, and what works for one might not for the other, and for another it might even be dangerous! Ostomyland is not responsible for the content of the posts made, each member is responsible for their own posts. So if you ever did get any duff advice (unlikely, but could happen one day....) then blame the person who posted the message, and not Ostomyland. We are proud to be HON code certified and work very hard to meet the requirements of their principles. As such, and as requested under principle 4 of the HON code guidelines we must ask that members of the forums please quote sources for any medical information they give which is not based on personal experience.   Thanks.

6 posts in this topic

 

I have just been checking out the issue of ostomy shower guards in the UK. There is a useful article on the US Stomashield site. However the problem with US products is that they can often have hefty import duties attached. The US blue crown apron is one such product. Now - don't tell me to wrap a plastic sheet around it or a shower cap over it.... are there any specialised products like Blue Crown on the UK sites? Can anyone advise? 

 

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I had a friend with a 3D printer, who actually made me a cover that slips over the top of my bag (we call it a stomalope)! I've been using it for a couple of years, is fabulous! It's about the same dimensions as an old fashioned computer disk (my bags are small as I irrigate), but could easily be made bigger...will try and post a photo for you

GeekyJen likes this

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Hi, that's handy. I have found as I am trying to change bags and flanges every two days - that a daily shower ends up tricky. Do you want an email to send a photo to? Send it to Pearlx37@aol.com

Stephen

 

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To shower when I'm not changing the bag:   I just use one of the opaque bags that comes with Hollister (USA) bags, and tape it over the bag so water doesn't leak into the sides.  It works pretty well.

 

On 4/7/2017 at 0:41 AM, ACE? said:

I had a friend with a 3D printer, who actually made me a cover that slips over the top of my bag (we call it a stomalope)! I've been using it for a couple of years, is fabulous! It's about the same dimensions as an old fashioned computer disk (my bags are small as I irrigate), but could easily be made bigger...will try and post a photo for you

 

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The stomagear link is: https://www.stomagear.com/?gclid=CL_LooKjzNMCFQO5wAodXJgNng

In keeping with that link, for the purpose of showering, what if you were to buy an appropriately sized plastic container, cut it to shape and cut slits in it to accommodate a D ring belt being passed through it, pad it and waterproof it next to your skin (top and sides) by affixing one-side adhesive foam weatherstripping to the container perimeter?  Maybe an easy, quick and cheap DIY solution?

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 I realize I am a few months behind on this topic but my husband had a fistula caused by a tumor in colon that grabbed his bladder and his colon & bladder both burst from this.  We were finally able to coordinate our surgeon with an urologist to tackle this 9-10 hour surgery and we now have a permanent colostomy. Actually, this is temporary because we had to have a revised surgery to repair a dead stoma, a dying colon & we are awaiting an ileostomy as soon as he can live through another surgery. We had an ileostomy in 2012 that we had taken down but we have always used Saran Wrap to cover him. Since we don't know how long it will be before the next surgery, I haven't ordered anything permanent but there are belts, etc you can order. Since I don't know about his weight later on, we are using Saran Wrap until we eventually know what apparatus to order. Our 1st ostomy we knew would be taken down so we just wrapped up. Works very well. 

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