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    • Trekkie Monster

      Check all advice with your medical team! Plus, quoting medical sources (HON code requirement)   08/25/2015

      Here at Ostomyland we are a patient run community - meaning we have learnt what we know as a result of being the patient and 99% of our members have got no medical qualifications whatsoever, and so any support replies are usually based on personal experience or friends/family-members personal experience. As a result Ostomyland strongly recommend that all members should check the accuracy of any support/health advice they have been given here with a member of their own medical team (GP, ET/Stoma Nurse/ Surgeon etc) BEFORE acting on it. This is for your own safety, as all our bodies are very different, and what works for one might not for the other, and for another it might even be dangerous! Ostomyland is not responsible for the content of the posts made, each member is responsible for their own posts. So if you ever did get any duff advice (unlikely, but could happen one day....) then blame the person who posted the message, and not Ostomyland. We are proud to be HON code certified and work very hard to meet the requirements of their principles. As such, and as requested under principle 4 of the HON code guidelines we must ask that members of the forums please quote sources for any medical information they give which is not based on personal experience.   Thanks.
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Carol in MO

Ostomyland on fb

2 posts in this topic

I have a question about Ostomyland on fb, which was suggested I join by someone on this site.  I surmise a lot of people here also belong to that fb group. My question is this:  If I post anything will other fb friends who know nothing about my iliostomy see those posts? Same question goes for if I comment on another's post, will my unenlightened fb friends see them?

I have many "friends" who are nothing more than people I used to share coins with through games, whom I have never met, and are not personally involved in any way with my life. I think my question is one of not knowing how "closed" the group is.

 

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