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    • Trekkie Monster

      Check all advice with your medical team! Plus, quoting medical sources (HON code requirement)   08/25/2015

      Here at Ostomyland we are a patient run community - meaning we have learnt what we know as a result of being the patient and 99% of our members have got no medical qualifications whatsoever, and so any support replies are usually based on personal experience or friends/family-members personal experience. As a result Ostomyland strongly recommend that all members should check the accuracy of any support/health advice they have been given here with a member of their own medical team (GP, ET/Stoma Nurse/ Surgeon etc) BEFORE acting on it. This is for your own safety, as all our bodies are very different, and what works for one might not for the other, and for another it might even be dangerous! Ostomyland is not responsible for the content of the posts made, each member is responsible for their own posts. So if you ever did get any duff advice (unlikely, but could happen one day....) then blame the person who posted the message, and not Ostomyland. We are proud to be HON code certified and work very hard to meet the requirements of their principles. As such, and as requested under principle 4 of the HON code guidelines we must ask that members of the forums please quote sources for any medical information they give which is not based on personal experience.   Thanks.
Janylaw

Pain and prolapsed stoma

2 posts in this topic

Hi all,. 

This is my first time posting anything. I have had my colostomy for almost 4 years and I have held on to the hope for reversal through it all. Denial? Maybe. Anyway, my stoma prolapsed and was revised twice. No more will be considered unless I agree for permanent status so I endure. Because the stoma is prolapsed, it gets in the way and stems flow which is often painful. I am also prone to diarrhea and that hurts more because it burns. I can't seem to figure out which foods will hurt and suck at it so I avoid eating and eat when I'm starving. Generally miserable. It often feels like my intestines are churning and twisting itself in knots. I know it sounds strange but that's what it feels like to me. Foods that are binding like potatoes hurt because the prolapsed stoma gets in the way and other foods cause watery stools that burn. I need help finding food that won't hurt. Thanks. 

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Protein shakes and bars and oatmeal (small flakes, well cooked).  Pork (lean) and cold water fishes.  Also Gatorade.

Good Luck.

Edited by laurence

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