laurence

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About laurence

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  • Location Montreal, Quebec, Canada
  • Gender Male

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  1. Mary, There is an easy fix to air (bloating of the bag):  It's called a two-piece drainable bag.  Your daughter may either burp the bag where it joins onto the wafer or vent the bag through the bottom.  Try it...  P.S.  Unfortunately, filters are not known to work well...  Best, Laurence.
  2. Alternative to 3M transpore tape

    You may want to look into waterproof but air permeable perimeter seals like ALP Global's Sure Seal http://www.alpglobal.com/Sure-Seal-TM-Rings.html  Alternatively, you can custom cut your own (best fit) from 30 mm (6 inch) by 10 meter (11 yard) rolls of the stuff.  There are two readily available brands that do this: (1) 3M's Tegaderm (ALP Global uses this) and (2) Smith & Nephew's Opsite Flexifix (I've used this for years for running, biking, skiing, swimming and SCUBA, etc.) . 
  3. You may wish to have a look at my reply in "The best ostomy bag for athletes"
  4. You'll have to experiment with wafers and bags but you are likely best to consider the extended wear offerings. It's generally not the bag that leaks but that the wafer breaches along the perimeter.  Also, try Hollister's Adapt Medical Adhesive if you need yet more stick (although sometimes less is more) http://www.hollister.com/en/products/Ostomy-Care-Products/Ostomy-Accessories/Adhesives-and-Removers/Adapt-Medical-Adhesive-Spray So, may want to look into waterproof but air permeable perimeter seals like ALP Global's Sure Seal http://www.alpglobal.com/Sure-Seal-TM-Rings.html  Alternatively, you can custom cut your own (best fit) from 30 mm (6 inch) by 10 meter (11 yard) rolls of the stuff.  There are two readily available brands that do this: (1) 3M's Tegaderm (ALP Global uses this) and (2) Smith & Nephew's Opsite Flexifix (I've used this for years for running, biking, skiing, swimming and SCUBA, etc.) .  And you'll get used to carrying a repair kit with you on your work-outs.  It will probably include some of the above and Hy-Tape https://hytape.com/ Good Luck.
  5. My dear friend I owe you an apology. I’m sorry I am not able to be here on a regular basis and I may appear as a surfer. I have had many major issues since May when I had an emergency ostomy. One of them being homelessness. I have been bouncing around to friends and sometimes I’m in an area where there is no internet or cell in some areas. Please don’t let my actions reflect on to others or this group because it is an awesome group and there is always something new to learn here. I am fairly new to the group thing but right now I am restricted as to participation. I hope you get everything you need from this group. 

  6. So glad that I took the time to analyze and respond (on November 1st) to Narkor's desperate plea in a timely manner so that he would have some help in making his decision by November 22nd - His last visit here was November 1st so he likely hasn't even read it.  Unfortunately, not the first such happening... Maybe the time has come for me to re-evaluate whether such is worth my efforts, general approval rating percentage (Likes to Posts ratio) notwithstanding ...
  7. "20% to 30% chance they did not get all the micro cancer cells which are undetectable in any test. In order to prevent the 20-30% chance there are undetectable micro cancer cells from moving to my lymph nodes then liver and lungs, is to perform the surgery. This will reduce the 20-30% to 3%." Okay, Please consider this and discuss with appropriate medical personnel if you are so inclined. Removal of colon 5 cm from both sides of where polyp was removed reduces cancer risk from 20 to 30 percent to but 3 percent.  Presumably, the 5 cm was chosen because after that each cm more is statistically insignificant for its effects when compared to the adverse other effects of that removal.  Thus, can a standard normal curve be fitted to the 10 cm interval, polyp removal site on centre?  If so, you may find the statistical risk of leaving the absolute minimum on the anus side to keep a functioning sphincter and anus acceptable.  Now, this will, no doubt, be a very delicate operation requiring a highly skilled colorectal surgeon but, if it were me, I'd be asking the questions.  Note as well that, again statistically, the operation to remove sphincter and anus carries with it a 10 percent chance of rendering you impotent. Tough call.  You need to pull in all available resources to make your most informed decision.  As to the qualitative factors, well, I had my total colectomy at about your age and I've learned not only to live with it but to flourish - Life is good.  Good Luck.
  8. The TIES System

    How about posting a link to the titanium portal from Ostomy Cure, Norway website?  Thanks!
  9. Did you try a hair dryer on Low heat to start?
  10. Cut from polyester fleece an oval 9 inches by 6 inches, hole at 6 inch circle on centre just large enough to accommodate intersection of flange and pouch.  Pull it on like a hotel "Do Not Disturb" sign on a doorknob.  Wicks away moisture, soft on skin, won't fray, easily washable, cheap and comes in myriad of colours. Also, ALP Global Sure Seal Rings. Good Luck.
  11. Cleaning

    Try liquid hand soap mixed with an equal part of hand lotion (with paraffin) and a bit of water to be applied and lightly scrubbed with a wash cloth.  Good Luck.
  12. Ostomy shower guards in the UK?

    The stomagear link is: https://www.stomagear.com/?gclid=CL_LooKjzNMCFQO5wAodXJgNng In keeping with that link, for the purpose of showering, what if you were to buy an appropriately sized plastic container, cut it to shape and cut slits in it to accommodate a D ring belt being passed through it, pad it and waterproof it next to your skin (top and sides) by affixing one-side adhesive foam weatherstripping to the container perimeter?  Maybe an easy, quick and cheap DIY solution?
  13. In the post

    You're going to risk not having your needed ostomy supplies for some 20 pounds?  I wouldn't...  Really?
  14. Make some phone calls to hospitals, pharmacies.  In the meantime, buy a roll of duct tape... PS  Texas comprises almost 262,000 square miles...
  15. URGENT wafer problem

    What about Nexcare Liquid Bandage? (Same as Cavillon Spray but available over the counter at pharmacy for much less.)