HildeAL

50 posts plus
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About HildeAL

  • Rank
    Advanced Member (100+)

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  • Gender Female
  • Interests traveling
    psychology
    education
    language

    life isn't about finding yourself. Life is about CREATING yourself

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  • Website URL http://members.virtualtourist.com/m/64da5/

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  1. hi folks

    just popping in to say that you're not forgotten, but I'm having problems with my computer at home. It can't take a lot of pictures and graphics, and that's why I have to save my capacity for things that are urgent. Is it possible to get access to this site through mobile phone or iphone? I'm considering buying an iphone soon, if I've got enough money... except for my computer problems I'm doing great physically. I'm working for the deafblind organization in Norway. I still don't earn my own money at the moment, it's still unpayed work. so how are you doing?
  2. I'm so zzzzzzzzzz

  3. I'm so zzzzzzzzzz

  4. zzzzzzzzzzzzzzz

  5. zzzzzzzzzzzzzzz

  6. happy new ostomy year!

    This has been an exciting and strange year. I feel that I’ve got my physical and social life back, it feels amazing, but I still have feelings when I feel stucket and I have this OMG feeling when I wake up in the morning and see my colostomy bag. The word “permanent” is the scariest part of the whole thing, there’s no way back and it freaks me out sometimes, especially seeing all my ostomy supplies but fortunately just for some minutes. I wish that I could have had this surgery many years before; I feel that I have so many years to catch up. But most of all I wish that my doctors would suggest this for me so I didn’t have to ask for this, and feel like a strange patient who would want this, that really bathers me. I’m very happy for my new life with my ostomy, but I still don’t feel comfortable telling about my ostomy to others. One thing I really wish is going to the pole, but I don’t feel ready showering among non ostomates. It’s so expensive this pool activity so on the positive side, I save some money. Before my surgery I was scared that I would end up as a person receiving sickness benefits for the rest of my life. Ok if nothing could be than I’ve had to accept that, but if something could be done, it just feels like a waste of money for a person who just wants to work. Some of the things that I still struggle with are my blockage from time to time. It has been difficult knowing what sorts of food that giving me the most problems, and how much I can eat with some of that food. I’m also not used to small meals, I tend to over eat, and that’s a big challenge I have to face. I often think about some of my friends in this situation. One of my friends is going blind, there’s nothing anyone can do. Another friend is going deaf. The only thing that can help her is a cochlear implant, but it’s so expensive that according to the rules she’ll have to be totally deaf on both ears, then she have to stand on a waiting list for four years. If she lived in the US her insurance would cover it, but she doesn’t have all that money to go to the US for this surgery. It puts my life in perspective. I know they would rather have a colostomy instead of going blind or deaf. So I should be happy not being in their shoes. This fall I have been working as a voluntary teacher for a school for grown up with different disabilities. I was really sad to live, but it’s time to go on to another place. I’m on a job training programme so I’m supposed to be in different places to see how much I’ll be able to work. I also had a wonderful course in Italy with some members of my education association. That I would have to spend that much time in the bathroom like I did before my surgery made a huge difference to my stay. The last day in Italy staying in a terrible hostel was not a good experience but I still live- and learn. I wish you all a wonderful new year 2013! I’m glad to know you folks.
  7. November

    Thanks Trekkie Monster, and a happy new year to you too:)
  8. November

    Long time since I’ve been here. I have been busy working as a volunteer teacher in a special school for adult who needs extra tutoring. December 13th is my last day there, so I have to find somewhere else to work, with my education I’m not fully qualified to work as a teacher in this place. This week I decided to work for the Norwegian ostomy organization. I have no idea what I’m going to participate in, but I think it will be very interesting to know how the organization work, and what doesn’t work. We have been told that our government wants to reduce the ostomy budget, which means that we can’t get all the ostomy supplies we want and need unless we want to pay more than our maximum prize for health care. I hope the economists haven’t seen the ostomy dresses made by Ingrid Anette (in my previous entry), they might think that’s how we use our ostomy bags I really miss going to the pool like I did before my ostomy surgery. But I don’t feel ready to shower in a public place, and I need to buy a swimming suit, can’t use the bikini anymore, it’s difficult to hide the bag underneath it. And then I get scared for having a leak in the pool. The bags should be safe, but what if......I know I’m a worrier, but have you had any problems being in the pool and sitting in the hot tub with ostomy bag? My part time dog is Luna is on vacation in my apartment. Just remember at any point to "relax and go with the flow.....
  9. proud and fearless with ostomy

    Holiday I actually have an autumn holiday, I haven’t had such a holiday since I was a school child, but now that I’m working in a school for adults, I get the teacher’s benefits. But what am I going to do this week? I have to check with my other friends who work as teachers in the kindergartens, if they have such a holiday as well. But I don’t really need or want this holiday. I’ve finally started this job project as a part of my back to real work plane, and I like being busy with ideas and projects. I’ve have had so much spare time before this job, that I don’t want a holiday before next year This month I was on a motivation seminar with this woman ( ingrid Anette Hoff Melkersen....) She and an ostomy nurse travel around Norway with her show called “proud and fearless with ostomy”. She talks about her life with Crohn's syndrome, how it was like being 15 and spend the entire time in the bathroom when you’re should use that time with school and friends, how she deals with her ileostomy and her three little kids who think that all the other mothers are strange because they don’t have a bag on their stomach. She signed up for a photo competition and became number three among all other women who wanted to be named as “Norway's finest lady” The dresses are actually made from ostomy bags
  10. grasping at stars

    do you know the name of these bags? I suppose it's not Sensura Mio
  11. grasping at stars

    thank you so much for giving me all these useful tips:))
  12. grasping at stars

    The first man on the moon is dead, Breivik is sentenced to 21 one year in prison, and I’m looking forward to my trip to Rome in September First of all I wonder what to wear when I want to swim in the pool and afterwards. Should I wear my bikini shirt all the time while I’m working on getting tan, or should I just show my ostomy like it was the most natural thing in the world? I’s impossible to hide my bag completely. I’m looking for ostomy bags, one piece with no windows showing my poo. There’s only one pharmacist who knows anything at all, and she’s busy. I can’t understand why the others working at this special pharmacy with ostomy products are so incompetent. They know almost nothing about ostomies, so I have to consult with other ostomates. . May you rest in peace Neil Armstrong. I’ve always been fascinated about time travels and moon travels, so to honour you, I want to go there too- as the first one with a colostomy! So do you want to join me on this ostomy expedition? I see this as a great opportunity to educate people about ostomies.
  13. thursday

    I’ve given up my irrigation project. I’m only poo free for15 hours, and I don’t want to spend all that time in the bathroom just to feel bloated and nauseous afterwards. But when I’m going to Rome I might consider it, just to avoid having to change my bags at the airport and before the security check. I rather not have any questions about my stool at my stomach in such an occasion. This morning my neighbor was knocking on my door, complaining about the noise coming from my apartment, she said she could hear everything I did. I feel a bit paranoid. I wasn’t aware of my noise, so I have to be quieter in the future. My father is sick, with heart problems. He’s going to have a hip replacement this month after waiting nearly a year to have this procedure done. Now this private clinic won’t do this operation, because he’s developed high blood pressure and clogged arteries in the meantime. So he’s referred to a big public hospital and has to wait 6 months for his surgery. And his pain is getting worse, and we have no idea what to do here. And now this hospital won’t operate on him while he’s on medication for high blood pressure. It’s a frustrating situation. And we got one of the best welfare systems in the world.
  14. irrigation again...

    Irrigation! I irrigated last night, and this afternoon there’s a little poo in my bag again. So I hope that’s it for a while. I’ve been four hours in the forest today, doing some orienteering. I found two posts, and God how I feel clever today! It’s a boost for my self-esteem. And if I don’t find it I get a lot of exercise. This last week there’s been massive search for a 16 year old girl called Sigrid who’s been missing since last Saturday. Only her cell phone, shoes and one sock is left in the area where she disappeared. There are volunteers searching every spot in Oslo, trying to solve the mystery. I haven’t seen such an engagement for a missing person ever before. So if you see a blond 16 year old girl with no shoes and only once sock and a brown leather bag, you should tell us!