loisw

Happy Helper
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About loisw

  • Rank
    Super Member (1000+)
  • Birthday 10/17/1938

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  • Facebook Lois Cutler Wasserman

Profile Information

  • Location CT USA
  • Gender Female
  • Interests My family and friends. Reading. watching sports and news shows on t.v., walking on treadmill (hate it, but I know I have to do it), playing computer games, helping friends solve computer software problems,

Recent Profile Visitors

16,862 profile views
  1. Thinking of you and hoping you are well~

  2. Odour-help!

    Hi there, Welcome to Oland.     First of all, I  don't wear a bag with a filter.  I'd much rather "burp" it if I have to.  I always could smell myself if I wore a filter, even with the tapes covering them.   There are so many products on the market to control the odor.  You can call the companies that make them and request samples.  I was told to try putting a mint life saver in the bag.  I'm sure you'll get a million other suggestions as more people read your post.     A (funny and) somewhat related story.......I went out one evening right after snapping on a new bag.   When I went to go to my seat, I got a whiff.  I turned around and went to the ladies' room.    There was one tiny spot that wasn't snapped tight.   A friend said "why did you leave so fast?"   She knows I have a colostomy, so I told her what happened.   We both just kinda laughed.   Also, and I believe this to be true, we ostomates can smell ourselves when nobody else can.   My hubby swears he doesn't smell me, and I feel like I stink.   My nurse even put her nose right up to my bag and said she didn't smell a thing when I was keeling over from the smell.   I've never smelled anyone else who has an ostomy.   Good luck.  I'm sure you'll find a solution to your problem.
  3. Hi Bob. First of all, welcome to Oland.  I  really wish I had a good answer to your dilemma.   I think I used to sleep on my stomach.  It's been so long that I can't even remember for sure.  Now I sleep on my back or on my left side.   I have really bad scoliosis, and it's painful to sleep on my right side....but that's really               irrelevant to your problem.   lol  Anyhow, I bought a bunch of travel pillows and distribute them all around myself when I sleep.   That really helps me. Good luck and let us know how you're doing and if you've figured  anything out.
  4. Stool's still firm.  lol   YEAH   I have to call the doctor who did it ten days to two weeks after, so I'll give it over the weekend. I'm going to send you a p.m. because I have to spout off.  lol
  5. I don't want to jinx it, but I see little signs that it might have "taken."  SHHHHHHHH   I actually had a little piece of formed stool when I got up this morning.    It's been sooooooo long.
  6. Hi,  I did have the transplant yesterday and now we wait to see if it "takes."  It should take 1 to 2 weeks to know.    Now I'll complain a bit (actually a lot....which I don't usually do. lol).   I don't know why, but I have a really hard time with the prep. I guess it's just the way my system works.  My hubby has watched me struggle with this time after time.   If I can't put something solid in my stomach, I get  a really sick feeling........headache, nausea, etc.  I have trouble even  getting liquids down, so it's real scary.   So the day before was a really rough day.   And I can only use Dulcolax.  I can't drink the prep because it comes right back up. Also, every time I've had a scope in the past  ( and I've had many)  they give me something to eat and drink the minute it's over.   But this hospital didn't.......and I had to wait a few hours til they got a wheelchair to take me out.   It was a long walk to the  entrance, so they take everyone out by wheelchair, even though I had my own walker with me. The nurses there weren't what I would call the most compassionate....with the exception of 3.....the one who brought me in, the anesthesia nurse who assisted the anesthesiologist and an ostomy nurse.  The others were all businesslike and not warm at all.   In fact, I told them I had to pee because of the i.v. and I had to wait about 20 minutes for a commode.  I told them I was about to burst, and they went about their business.  Not good! My instructions were to rest the rest of the day, but the last nurse I saw told me to go home, scrub my bathroom, wash all my clothes and change my sheets to make sure there were no c-diff spores left.   I  started to clean my bathroom and was feeling so lousy that I had to stop.   Then I realized they're not used to people with ostomies.   In fact, one of the nurses in the procedure room asked the doctor if she should turn me on my side and he told her not to  because he was going in through the stoma.  She said she had never seen it done that way before.   I guess considering there are only 50,000 ostomates in the U.S., that's about 1000 per state, and how many of those 1000 end up with chronic c-diff......hmmmmmmmm so I guess they don't see many cases like mine. Then I looked at the doctors report and he listed everything thing they do during  a routine colonoscopy.......such as "he went in  through the sigmoid colon......(I don't have a sigmoid colon), and mentioned all the other parts that I don't have.   Oh well.  The whole thing was a nightmare......but if it works, I'll say it was worth it. Oh, and then on the way home, we got in a traffic jam because there was an accident on the highway.  So we finally got off the highway, but all the local roads were jammed too because of the accident.   Instead of taking about 20 minutes to get home, it took us 1 1/2 hours.  And I complained all the way home.....my poor hubby.   End of complaining.  lol So that's my story.   Now we wait.
  7. The darned pyoderma is getting bigger and bigger, and it bleeds like crazy when I take the bandage off.  I don't know  how they're going to be able to do the transplant.  It's such a mess.   Last night when I was changing the bandage there was blood dripping all over the floor. I had a heck of a time stopping the bleeding long enough to treat and cover it.   I've learned to put a disposible pad on the floor, so at least it's easy to clean up now.   I iassume they'll be calling me from the hospital to go over things.  I'll ask them if I should bring bandaging materials to cover the pyoderma while they're doing the transplant.   I already told the doctor's nurse that I don't want them putting the wafer, etc. back on.  I'll do it once I'm up.....and my hubby will be there to help me.  The last time I had a plain colonoscopy they put the wafer on wrong, and I was in  horrible pain by the time I got home. They're not ostomy nurses;  they're just g.i. nurses.
  8. Would you  believe I got pyoderma #4 a few days ago.   I called the office of the g.i. who is  doing the  transplant, and they said it's okay to go ahead with it.  WHEW!!!! The nurse (who I don't think is the brightest) asked me if my rectum is sewed up, and I told her it isn't but that I don't have a sigmoid colon (or a descending and just an itty bitty piece of transverse for that matter) so  he HAS  to go through the stoma anyway.  The opening to the colon is on the left side of the stoma (most of the time) and the pyoderma is on the skin on the right side.  It's been bleeding quite a bit, so I'll bring the supplies I use to bandage it.   They'll  probably want to cover the pyoderma while he's doing the procedure.  I'll leave that to him. Let's just pray the c-diff  hasn't gotten into the small intestine.   The present bout has been going on for 21 months.
  9. It's scheduled for July 1. To complicate matters, my back has been acting up really bad, and I hope that doesn't interfere.   I went to the pain clinic and they scolded me for NOT taking my narcotic pain pills.  They said they usually have the opposite problem with people who want to take more, and they're not used to people who try to cut back all the time. lol I asked my infectious disease doctor if I could contact my surgeons to get a schedule to repair my hernia and have my itty bitty colon straightened, but he said I'd have to wait a while to make sure everything is back to normal. What is normal? lol This lousy bout of c-diff has been going on well over a year and a half. My hubby is my donor, and apparently he's passed all the testing. It's been over two weeks since he was tested and so far we haven't heard anything to the contrary. So I guess we're good to go. I went to see my primary because of my back, and he said that I'm the first person in their practice to have a fecal transplant, so all the doctors in the group will be following me. YEAH FOR ME. 
  10. farting

    I don't make a big deal about it.   If I feel gas building up, i do cover my stoma with my hand.  If it sneaks up on  me (which it usually does), I just say "Sorry......no sphincter....no control."    Honesty is the best way to handle it.
  11. My upcoming fecal transplant

    It's scheduled for July 1. To complicate matters, my back has been acting up really bad, and I hope that doesn't interfere. Got an appointment at the pain clinic tomorrow. I asked my infectious disease doctor if I could contact my surgeons to get a schedule to repair my hernia and have my itty bitty colon straightened, but he said I'd have to wait a while to make sure everything is back to normal. What is normal? lol This lousy bout of c-diff has been going on well over a year and a half. My hubby is my donor, and apparently he's passed all the testing. It's been over two weeks since he was tested and so far we haven't heard anything to the contrary. So I guess we're good to go. I went to see my primary because of my back, and he said that I'm the first person in their practice to have a fecal transplant, so all the doctors in the group will be following me. YEAH FOR ME.
  12. Pouch Changes & Wiping

    OK.  I  thought you used a once piece, but it's  the drainable part that's the difference.  I've been dealing with c-diff for so long that I wouldn't dare use a drainable bag.   I feel it's much more sanitary to toss it in a Bag-It-Away bag and put a new one on.   I really don't want to share this infection with anyone else. By the way, I am having the fecal transplant some time soon........I don't know just when.  Of course, when that's done, it's surgery again for the hernia and twisted colon.   My g.i. is really concerned about how tightly it's twisted.   He said it's so short and so twisted.  Of course, when I have the surgery, it'll mean more antibiotics; and I'm afraid the c-diff will come back.   My regular g.i. and my infectious disease doctor said the c-diff will probably come back.  The g.i. doing the transplant said it shouldn't come back. We shall see.   Also, I change my bag at least two or three times a day........often in the middle of the night.  And if I get two days from the wafer, I consider that good.   My stool is so acidic that it eats right through the wafer.   That bothers me more than changing the bag.       One more thing........when I went to my g.i. last week, he wanted to check the hernia.   He just lifted the bag a bit because I have bumps under it and he wanted to see them, and he said "Boy.....you sure do keep things clean."   lol  He said the bumps might just be a little stool caught up in there.   I'm not going to worry about it.  I sure get enough output, so I know I don't have a blockage.
  13. Pouch Changes & Wiping

    Alice, you must be using a one-piece drainable.  I use a two-piece closed end.  I change the pouch whenever I need to, and some times that's quite often. First I wipe the entire stoma with Kleenex hand towels.  Then I use Q-tips around the edges to get to the hard-to-clean places.   After that I give it another once-over with a hand towel.  And yes, I often bleed.
  14. Getting to know your stoma

    I have to keep a close eye on things.  I have lots of smaller hernias on my huge one.  It's hard to explain.  There are bulges all over the place.  I use Hollister Adapt rings and I've been pretty lucky in that I get very few leaks.   And when I do get them, they stay under the wafer and don't even get under the tape barrier.    I do change my wafer every other day because of the fact that my stool is so acidic that the wafers deteriorate pretty quick.
  15. I'm sorry I haven't welcomed you earlier, but I've had a few problems here.  I hope by now you're feeling better.   I wish you the very best of luck.