crystal

Members
  • Content count

    42
  • Joined

  • Last visited

2 Followers

About crystal

  • Rank
    Member
  • Birthday 05/04/1980

Profile Information

  • Location North Carolina, USA
  • Gender Female
  • Interests Reading, Travel, Movies
  1. OMGoodness long time no blog

    I can not believe I have not blogged since 2011. Let's just say life got busy and lots of fun! I do believe that since my last blog I met the man of my dreams and got married on April 28, 2012. We had a beautiful church wedding and went on a Carnival cruise to the Caribbean for our honeymoon. Luck for us that was before the drama of the ship getting stranded in the ocean. We do love to cruise!! I also have a great niece on the way in September. I am so excited since it will be the closest to us having a child of our own. My wonderful husband had never really seen me at my sickest point yet, but I do know he will handle it in stride when my Crohn's does decide to rear its ugly head again. He has had to carry me to the ER on a few occasions and he did great (thank goodness if not I'd have to send him to the curb). I have been having some wonderful signs that maybe my wonderful remission just might be over for the time being. I have noticed the sed rate climbing and I really do not know what the next step would be. I am already on the MAX dose of Cimzia. I will deal with that when the time comes. Just always have the wonderful irritation around the stoma and ugly marks from the perstomal pyroderma. Oh well it is the battle wounds that make us who we are! Glad to be back! Crystal
  2. Happy Tuesday!

    Hi ya'll I had an ostomy meeting last night and I found it very interesting with the Conv-Tec rep talking about their new products. I was the only one in the group who used a different product. They had these new moldable wafers that now I am intrigued to try. She also said that they will be revamping there bags with some cloth. That was always the downside of that brand is they are plastic and not cloth. It is always an interesting and fun group. Also, around my stoma is still hurting and I know I need to see my ostomy nurse after the wedding is over. I need some relief. Well, I have a wedding coming up. My niece is getting married this Saturday. She is 8 years younger than I am and she is a lot like my sister. I am so happy for her. She is such a smart girl with a good head on her shoulders. Of course I'm in the wedding as her Maid of Honor so this week will be busy, but we are going to have a relaxing SPA DAY Friday. I cannot wait!!! I have never done anything like that before and I'm ready.
  3. I have started a Blog......REALLY!

    I have to say I have never thought about writing a blog so here we go. I have had my perminante ileostomy since June 24th, 2009 at the age of 29. I have to say that is a day I will never forget which is a wonderful thing. I have not been permitted to return to work which I have been out since March 2009. I so miss it but of course I have to do whats best for me and I guess this is it for now. I have had some of the MOST craziest disorders associated with a ileostomy. As my doctor said if its rare it WILL happen to me. I'm just special that way. I have had peistomal pyroderma which is open sores around the stoma. Eww I know. Well with medication that got better finally. Then comes last week when becasue of the medication for the pyroderma I looked like a blue smurf. Not a good look. The medication decreased my oxygen level to dangerous levels. So I was in the hospital for 5 days I have been in there longer so I was good. If I can stay off the meds I will be good so lets all hope the pyroderma doesn't come back. Well I hope it's not too painful to read.
  4. Happy Birthday Crystal! :)

  5. Pollen, Pollen go away please don't come back another day!

  6. Welcome to Ostomyland crystal - hope you enjoy your stay with us. :)