The latest support posts to the Ostomyland message board http://www.ostomyland.org/ostomyboardipb/index.php Fri, 10 Sep 2010 03:47:17 +0000 30 http://www.ostomyland.org/ostomyboardipb/index.php?/topic/6247-changing-supply-company/
i have always used hollister two piece with pink tape maybe its allergy i would like to try a sample of different supplier b4 i order a whole set of two pieces.

are rashes part of having a prolasped stoma i know its not from leaks have not had one in months. ]]> Fri, 10 Sep 2010 03:47:17 +0000 http://www.ostomyland.org/ostomyboardipb/index.php?/topic/6247-changing-supply-company/ http://www.ostomyland.org/ostomyboardipb/index.php?/topic/6246-breakaway-2011/ YHA National Forest, (Derbyshire) is the venue for the first event Breakaway of 2011.

This venue has proven to be a firm favorite with Breakaway families. All rooms are 2-4 beds and en-suite. There is also a bar, bistro and Coffee Shop.

Breakaway offers the chance for families and young people to meet, talk about and share their experiences in a relaxed and friendly environment. The main aim of Breakaway though, is to have fun!

Activities may include climbing, archery, abseiling, canoeing, survival skills and much, more!
There will be stoma care nurses on hand to offer support, as well as people who have firsthand experience of living with a bowel and/or bladder diversion/dysfunction.

The cost of 3 nights full board accommodation and activities is just £165 per person. No one should miss out on the opportunity to attend a Breakaway event due to financial constraints.

Please request a funding application along with your booking form to apply.

Please visit our website www.Breakaway- visits.co.uk and use the contact us button to request a booking form.

Juliexx ]]> Thu, 09 Sep 2010 17:17:23 +0000 http://www.ostomyland.org/ostomyboardipb/index.php?/topic/6246-breakaway-2011/ http://www.ostomyland.org/ostomyboardipb/index.php?/topic/6245-post-op-question-please-reassure-me/
I am now 12 days post op (ileostomy) and am very freaked as i had a funny spasm, assuming this was just a muscle pain i went and sat on the loo just to make me feel better-like it was in my head-however i passwed a large blob of poop and lots and lots of bright red blood...I am hoping this is a by product and just the 'left overs' from the operation, but cannot find anything at all mentioned anyehre in any of the guides/leaflets i was given, nor online, did anyone else have this? Or should I call the DR or go to hospital? I feel ok, no pain just the spasmy feeling and that went with the passing. Bit freaked but not sure I should even be worried, as I dont know what is normal!!

Hope you guys can give me some advice :/

Thanks in Advance

Leia]]> Thu, 09 Sep 2010 16:22:18 +0000 http://www.ostomyland.org/ostomyboardipb/index.php?/topic/6245-post-op-question-please-reassure-me/ http://www.ostomyland.org/ostomyboardipb/index.php?/topic/6244-pre-op-date-changed/
This is the same day as his warfarin appointment (at a different hospital) which was arranged as his "coming off the warfarin for his op" appointment. I've phoned the warfarin department and they say it's okay for him to attend the next day, there's still enough time to stop the warfarin.

It now means he's 3 appointments on 3 days in a row, as he has a dentist appointment on the third day. When this was made he had no other appointments that week. It's very tiring for both of us - G because of his heart failure, and me because of my ME - to have events like this close together.

I was advised to make a complaint because of the too-long wait for his previous op. So I shall be mentioning this date-changing and the problems it causes in the letter.]]> Thu, 09 Sep 2010 11:40:29 +0000 http://www.ostomyland.org/ostomyboardipb/index.php?/topic/6244-pre-op-date-changed/ http://www.ostomyland.org/ostomyboardipb/index.php?/topic/6243-does-previous-radation-treatment-cause-problems-to-post-op/
I have Radiation Colitis following Endometrial cancer 3 years ago and radiation treatment then. I get all the symptoms of Ulcerative colitis. In June I had a really bad flare up following a course of antibiotics for a chest infections, this flare up has only just subsided- for now. I was told then I would need a stoma and opted to go for it asap. Well having waited all summer I finally got to see the surgeon yesterday.
She was very nice but says that as I have had radiation 3 years ago I will take a long time to heal and recover and likely to have a lot of problems with discharge. She wants to do the Formalin coating instead to stop the bleeding but I know I will have to have a stoma sooner or later and have prepared myself as much as possible. No decision yet as I need an urgent endoscope first and then go back and see her.

I just would like to hear from anyone in a similar situation who has had pelvic surgery in the past before having their stoma and what their experience is/was.

sorry this is a bit long.]]> Wed, 08 Sep 2010 07:55:22 +0000 http://www.ostomyland.org/ostomyboardipb/index.php?/topic/6243-does-previous-radation-treatment-cause-problems-to-post-op/ http://www.ostomyland.org/ostomyboardipb/index.php?/topic/6242-newbie-1-week-post-op-electrolytes-and-output-problems/ thought i'd say hello and howdy!

I am currently recovering from an ileostomy op due to severe crohns disease and have been in hospital 5 weeks now, had the op a week ago and had problems with electrolytes and bloods etc etc, now have an output that is too high...

Anyone else stay ages after surgery? I have seen so many people come ang go looking so well and although i feel awesome compared to when i was acutely ill, i am a bit fed up of hanging around!!
Still, those immortal words are muttered each morning..."Maybe tomorrow..."

Anyone else had electrolyte issues and high output? I am attempting to do all i am told,drinking the foul salt/sugar water stuff, eating crisps, bananas marshmallows etc etc but the dietician tells me to eat about 2500 cals and this obv means i will poop more, but the drs say i poop too much, approx 1700mls a day presently-what is supposed to be normal and i dont understand how eating more will make less poop...confusing!

So many questions! Other than that, it has been a quite smooth adjustment, and pretty easy now i have found convex bags!! no more leaks (fingers crossed!)and no more spending hours in the bathroom or in pain!! YAY!

I hope you are all well if not on the mend and happy!!

Leia]]> Sat, 04 Sep 2010 19:48:16 +0000 http://www.ostomyland.org/ostomyboardipb/index.php?/topic/6242-newbie-1-week-post-op-electrolytes-and-output-problems/ http://www.ostomyland.org/ostomyboardipb/index.php?/topic/6240-skin-around-stoma-is-oozingwafer-wont-stay-put/ I have a serious skin irritation around my stoma. The skin seems to be weeping/oozing, and therefore, the wafer continually loosens, and I have gone through 5 wafers in two days. Last night, we applied stoma powder over, and over, until it stopped leaking. Any thoughts on why this has happened, and what I should do about it? Thanks Fri, 03 Sep 2010 17:38:41 +0000 http://www.ostomyland.org/ostomyboardipb/index.php?/topic/6240-skin-around-stoma-is-oozingwafer-wont-stay-put/ http://www.ostomyland.org/ostomyboardipb/index.php?/topic/6238-had-reversal-and-thinking-about-getting-a-permanent-one/ My question is - Is it going to get any better???? After 3 months from surgery. At this point I am thinking about getting a Permanent Colostomy. I have talked to my Dr's assistant mulitple times.]]> Fri, 03 Sep 2010 01:49:49 +0000 http://www.ostomyland.org/ostomyboardipb/index.php?/topic/6238-had-reversal-and-thinking-about-getting-a-permanent-one/ http://www.ostomyland.org/ostomyboardipb/index.php?/topic/6237-leg-pouch/ Thu, 02 Sep 2010 19:09:09 +0000 http://www.ostomyland.org/ostomyboardipb/index.php?/topic/6237-leg-pouch/ http://www.ostomyland.org/ostomyboardipb/index.php?/topic/6236-showers/ Thu, 02 Sep 2010 19:06:14 +0000 http://www.ostomyland.org/ostomyboardipb/index.php?/topic/6236-showers/