All Activity

This stream auto-updates   

  1. Last week
  2. Earlier
  3. Sore

    I have what is a really red spot about the size of a pencil eraser. I seen the ostomy nurse and he said it is nothing to worry about but is getting worse. I use coloplast and did a sample of lite convex down from currently using deep convex. It didn't seen to make much difference but hard to tell seeing as they only give you 2 samples. I also use the powder product to dry it before adding sking prep but tried not using skin prep after the powder but no change. Also I currently use the strip past which is the long piece that you form as I tried the ring and stuck so bad it was worse. Who else could I see about this.
  4. I was wondering if maybe you were in the same kind of situation I am. message me back, if you would like I would appreciate it.

  5. I feel unwanted

    Hi,  I am new to a colostomy --just 5 weeks and have issues with my body, noise, will people know?  But my twin daughters [11] let me know that it is important what is on the inside, not on the outside and that helps A LOT!  Also one of my post-surgical nurses filled me in on the respect she had for ostomies because she would have lost her mother over 20 years ago if her mother hadn't had the surgery.  I have remind myself that my colostomy saved my life, and that's priceless.  
  6. The TIES System

    ostomycure.com
  7. The belt is a great suggestion.  I have used the belt on my daughter who is extremely heavy, plus I use Eakin Cohesive Ostomy Barrier Seal by Convatec.  I use it all the way around the stoma (you can stretch it into any shape you like) and it gets warmed just by the warmth of your hands.  It sticks to the flange like nobody's business and the pouch seems to stay put (I use the 2 part Hollister floating flange and pouch system).  I am also a newbie and am still trying any suggestion anyone out there has for just about any problem. Mother Roz
  8. Thanks for the tip.  No, I didn't use the hair dryer since I wasn't sure whether or not  you meant on the flange or the patient.  I have tried calamine lotion to dry my daughter's skin, and that seems to work.  Her skin is looking better and the flange seems to stick, so I guess I just use the dryer for my hair, but thanks for your interest and suggestion.  It means a lot to me that people care.
  9. The TIES System

    How about posting a link to the titanium portal from Ostomy Cure, Norway website?  Thanks!
  10. Has anyone used or seen the new titanium portal from Ostomy Cure, Norway?  It is a pouch-less system for persons with an ileostomy.  
  11. Did you try a hair dryer on Low heat to start?
  12. Hi every one,this site is a god send I live in south florida very hot very muggy  I had the same problem   I found duraheisive wafers and a strap worked great for me no matter how loose pouch gets it cant fall off the strap was easy  to adapt to and now I don't feel right with out it   the point is there is plenty of choices out there don't loose hope, youll find the right set up for you    Rick
  13. I have used the products sent to me for my daughter (who is mentally handicapped) to dry the skin around the flange.  I have the "no sting prep" and the "stoma powder" to make a crust.  Guess what - it doesn't seem to work and her skin is irritated.  How do I dry the skin around the flange so that it sticks without irritation? Thanks, mother Roz
  14. Cut from polyester fleece an oval 9 inches by 6 inches, hole at 6 inch circle on centre just large enough to accommodate intersection of flange and pouch.  Pull it on like a hotel "Do Not Disturb" sign on a doorknob.  Wicks away moisture, soft on skin, won't fray, easily washable, cheap and comes in myriad of colours. Also, ALP Global Sure Seal Rings. Good Luck.
  15. Since I received my ostomy I can no longer excercise or do hard. Any sweating even minor causes pouch to fall off. Plus live in hot climate and can't even walk my dogs. Any solve this problem?
  16. Cleaning

    Try liquid hand soap mixed with an equal part of hand lotion (with paraffin) and a bit of water to be applied and lightly scrubbed with a wash cloth.  Good Luck.
  17. Cleaning

    What to use to clean area from the sticky mess. The adhesive remover wipes don't remove it..
  18. I am writing to ask if you could publicise our new group on Facebook. We are a group of people who have for many different reasons ended up with 2 or more ostomy bags often because of cancer, nerve damage or trauma. We are raising awareness of urostomy users and people with 2 or more Ostomies. We have named ourselves Double Baggers. Both Urostomates and people with multiple stomas as groups are little known and face unique medical and social issues. Rachel Jury also writes a blog called Rocking2Stomas where she discusses all issues surrounding having two bags. We are also promoting having better body image in an age where women with perfect bodies get body shamed. Men and women who have ostomy bags often feel ashamed of their bodies we are using the analogy that our scars are part of our road map of life and we should not be ashamed of them. We see ourselves as survivors of our diseases and are promoting having a good body image despite having to wear ostomy bags or/and scars. We would really appreciate if you would make our grour known to your members we would greatly appreciate it. We are starting a campaign to raise these issues and need input from as many double estimates and Urostomates as possible. We are based in the Uk and have members from all over the world. We have only been live as a group for a week and have 62 members already. Please come and have a look and tell us what you think.   Thank you for reading this message. Louise Pearce  
  19. Ostomy shower guards in the UK?

     I realize I am a few months behind on this topic but my husband had a fistula caused by a tumor in colon that grabbed his bladder and his colon & bladder both burst from this.  We were finally able to coordinate our surgeon with an urologist to tackle this 9-10 hour surgery and we now have a permanent colostomy. Actually, this is temporary because we had to have a revised surgery to repair a dead stoma, a dying colon & we are awaiting an ileostomy as soon as he can live through another surgery. We had an ileostomy in 2012 that we had taken down but we have always used Saran Wrap to cover him. Since we don't know how long it will be before the next surgery, I haven't ordered anything permanent but there are belts, etc you can order. Since I don't know about his weight later on, we are using Saran Wrap until we eventually know what apparatus to order. Our 1st ostomy we knew would be taken down so we just wrapped up. Works very well. 
  20. Ostomy shower guards in the UK?

    The stomagear link is: https://www.stomagear.com/?gclid=CL_LooKjzNMCFQO5wAodXJgNng In keeping with that link, for the purpose of showering, what if you were to buy an appropriately sized plastic container, cut it to shape and cut slits in it to accommodate a D ring belt being passed through it, pad it and waterproof it next to your skin (top and sides) by affixing one-side adhesive foam weatherstripping to the container perimeter?  Maybe an easy, quick and cheap DIY solution?
  21. Ostomy shower guards in the UK?

    To shower when I'm not changing the bag:   I just use one of the opaque bags that comes with Hollister (USA) bags, and tape it over the bag so water doesn't leak into the sides.  It works pretty well.    
  22. Ostomy shower guards in the UK?

    Hi, that's handy. I have found as I am trying to change bags and flanges every two days - that a daily shower ends up tricky. Do you want an email to send a photo to? Send it to [email protected] Stephen  
  23. Reason For..

    Hi. First I am not a medical and so you must of course go on the more decisive interpretation of the medicals. This said, my own experience is that you ought to have tried all other options before going for an ileostomy for this purpose. I think sometimes they can jump the gun. But, if your symptoms are severe - you have to weigh the possible worst case situations such as blockage? ... against the difficulties which you will find with a stoma. I have had a stoma twice on a temporary basis in my life and it is not a plus. This said, the equipment has improved to handle a stoma since I first had one on a temporary basis as a child. So, get a really comprehensive view here; maybe a second opinion if this elective and non-urgent especially, in my view. In my view underlined. 
  24. Reason For..

    Hello All, New here. I'm scheduled to get an ileostomy on My 4th due to chronic constipation. I was hoping to get insight from others who had this surgery due to the same situation. I'm scared I could be jumping the gun and was hoping to see how severe the constipation was for others before taking this route. And then once taken, how has the outcome and your quality of life been? Thank You so Much Mandy
  25. I had a friend with a 3D printer, who actually made me a cover that slips over the top of my bag (we call it a stomalope)! I've been using it for a couple of years, is fabulous! It's about the same dimensions as an old fashioned computer disk (my bags are small as I irrigate), but could easily be made bigger...will try and post a photo for you
  26. In the post

    You're going to risk not having your needed ostomy supplies for some 20 pounds?  I wouldn't...  Really?
  27. Hi, I am off to the Netherlands next month and was wondering if I could send some of the ostomy supplies I will need to the place I will be staying, a friends home, via the regular postal service?   Only asking as I am only taking hand luggage so not much 'bag' room for my supplies....luggage in the hold is getting rather expensive now! 
  28. Load more activity