I am so sorry to have neglected my blog. It has been a CRAZY year, and hopefully I'll have time now to regularly update you as to Charlene's status.
For now though I have a quick question: Does anyone have any experience with a persistent rash under your flange? I have to admit that I have prided myself on how well I have been able to keep Charlene's skin under her flange looking. I've used a combination of things to quickly put to rest any rashes that have popped up. I always assumed the rashes were yeast infections and have treated them as such. This doesn't respond to anything (plus extraordinary measures - like taking a diflucan tablet once a day for a month, or using lotrimin powder under the flange consistently). I'm starting to wonder if she's become allergic to the adhesive (and we already use the Hollister flanges with the non-allergenic adhesive because she WAS allergic to the band-aid-like adhesive). Any advice would be appreciated. She has an appointment in two weeks with the wound care nurse, but I'm hoping someone here will have some advice for us.
Other than the rash under her flange, Charlene is in fairly good health, and takes a maintenance drug called Budesonide, which is a steroid that treats the inside of her intestine (the parts she has left!). She still suffers occasional symptoms like stomach aches, back aches and nausea but they are few and far between for the most part.