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ostomy nurse

HildeAL

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First meeting with my ostomy nurse after the surgery, the 16th of March. I’ve made a list with questions for her. I’m curious with the Irrigation procedure, when can I start?

I’m preparing to move back home again. I’ve lived with my parents since the surgery, but it’s not an ideal situation, I miss living closer to the city. So I hope I’ll be home during this week. But it stills hurts when I’m walking; it feels like I have open wounds in my stomach.

Mentally I’m down at the moment. I have mixed feeling about my new colostomy. I’m glad that this has given me a new freedom in many ways, but I just hate having a bag with poo on me. I think it’s disgusting. Sometimes I could just wish this was not my own choice, so I could just be angry with the surgeons and nurses when I felt like it.


Kay, Trekkie Monster, Jen55 and 3 others like this


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I'm sorry for you that you feel that way. You are still pretty new and very young. I didn't even know what happened to me at first. I hated the one-piece bags because I always felt "dirty." I could never keep them clean. I did feel better when I could use the two-piece. Also, in a way, my life is easier now. I'm not a prisoner to a toilet any more.

I also have been seeing a psychologist and spending a lot of time in here getting suggestions and realizing that my problems aren't the worst. The people in here are wonderful and support one another. I wish for you that you become peaceful with your colostomy and get healthy.

Jen55 likes this

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Thanks for your comments on my brand new blog :)

I saw my ostomy nurse today, I forgot my list, but I feel I have all the information I need. I was a bit disappointed to her answer on when I can start the irrigating. Do I have to wait 6 months before doing this? She’s going to talk with the other ostomy nurse and discuss this with her, anyway ’m going back there in a month.

I was also surprised to hear that the surgeon who I taught had done my surgery was replaced by another one. No bad replacement, but I was just so sure, that my own surgeon had been there.

What happens during a surgery with three surgeons? What do they talk about while they operate? Do they discuss my colon or do they just gossip? Do they listen to music? I’m curious ;)

I often feel that living with a stoma is presented as either glorified or grouse. In my own country’s ostomy organizatio, the ostomates seem to be divided between “the happy ostomates” and the bitter ones (who would rather amputate an arm instead of having a poo bag. They are sick and tired of hearing about the happy ostomates, while the happy ones are tired of hearing about the complaining all the times.

It’s frustrating having to deal with both groups actually. Spending times with the unhappy ones make me feel depressed, but being with the happy ones is a bit annoying, you feel you’re not allowed to express any negative thoughts about your new stoma at all and what impact the stoma has when finding a life partner. What should be my realistic expectations? What should I be prepared for? I just want some honest and realistic answer, so I know what to expect.

So I’m divided between heaven and hell, but I hope that’s ok.

av_nz likes this

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Hi Hal,

some nurses are hesitant about irrigation, which is a pity. At one time, I believe that you were taught to irrigate before you left hospital (if it was suitable for you). The downside to that was, if you couldn't irrigate for a while you didn't know how to manage the bags. So they decided that it was best to learn how to cope with the bag first, then teach irrigation. This makes sense.

But then irrigation seemed to "go out of fashion" with the idea it makes the bowel lazy and unable to work on its own, which isn't true.

In your case I would have thought you could start irrigating quite soon. Sometimes people have to wait for medical reasons but they don't apply to you.

Do listen to your nurse, as they are medically trained and I'm not. Nor am a weird, so ignore that Jason person. :p

There will be days when your stoma plays up or when you have to make adjustments for it. But you'll get to a stage where you mostly forget you have it.

You sound to be doing well. :)

HildeAL likes this

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Hi Hal,

I started irrigation within 1-2 weeks of my colostomy, I agree with Kathy it is a shame that it does seem like some nurses have shied away from irrigation. To be honest (being a prior nurse myself) I think it’s just the simple fact that it's not something anyone wants to do..mess with poo up close and personal it’s so much easier to let the patient take care of it with the bag system. (Sad insight...but true in the hospital setting unfortunately) Anyway, I love to irrigate it has made my life with this thing so much easier. I can get away with wearing a small closed end pouch and have almost no leakage during the day...now I will tell you it does take time to get comfortable with it. I can still remember my first few times I was a nervous wreck, and I had nursing experience lol!! Just always ask the questions and if you don't agree or like the answer than ask someone else, some people just do things different. I've got 14 years with it now, and sometimes on a bad day still get pissed off...that’s ok, just try not to stay in those places long. You'll get that independence again, just give it some time.

HildeAL likes this

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I just got my colonoscopy in April. I had cancer a very aggressive type so everything went really fast and I am having a rough time dealing with it all. I was suicidal for weeks afterward. The radiation treatments have made it difficult to hold my bladder I have ti wear diapers at night. I just feel like I will always be alone I mean who would want a deformed woman like me. 

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