I have to say I have never thought about writing a blog so here we go. I have had my perminante ileostomy since June 24th, 2009 at the age of 29. I have to say that is a day I will never forget which is a wonderful thing. I have not been permitted to return to work which I have been out since March 2009. I so miss it but of course I have to do whats best for me and I guess this is it for now.
I have had some of the MOST craziest disorders associated with a ileostomy. As my doctor said if its rare it WILL happen to me. I'm just special that way. I have had peistomal pyroderma which is open sores around the stoma. Eww I know. Well with medication that got better finally. Then comes last week when becasue of the medication for the pyroderma I looked like a blue smurf. Not a good look. The medication decreased my oxygen level to dangerous levels. So I was in the hospital for 5 days I have been in there longer so I was good. If I can stay off the meds I will be good so lets all hope the pyroderma doesn't come back.
Well I hope it's not too painful to read.