Hello this is Beth, Kay's granddaughter, I am sorry to write that Kay has passed this morning in her sleep. Thank you for all of your help and friendship you had with Kay. She talked about this site often. We know that it has helped her through some tough times and good troubleshooting, along with hints and tips.
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Hi I am Soozi and new obviously to site. Joined to look for answers for rash because of recent 23 February temporary stomas installation. I will leave my question at the bottom of page, any help appreciated. Happy Fridays and thank you. Soozi
Under the sticker part of bag about a cm and a half away from stoma is the upset rash (it is painful beyond words). Size wise for rash he is about 2 cm’s by 1 cm (not perfect circle) with a few tiny others and is slightly raised and angry. I also have a few very small red bits which are probably normal for just having a stoma installed. I only use barrier cream (the kind in all chat rooms they recommend) every 3 days on the advice of the stoma nurse on the phone and water when cleaning. I change the bag once a day although with the intense pain yesterday 3 times thinking the new bag might help. To relieve the pain I put an icepack just underneath the bag and it works. The pain is ok at night on my back after about 10 minutes. Standing up and walking round is very painful, right now I have my icepack on and although the pain maybe there, I can’t feel it, which is great. My question is, can I not put a rash cream on the rash area only? Surely the bag will still stick around the rash bit and it should be fine? If I am allowed then what type of cream is best, a nappy cream? Any help welcome and I will also call the stoma nurse today. Thank you.
Hi Soozi, I'm Kay
My stoma nurse gave me a powder I use under my flange. I apply a small amount of the powder (Brava Powder by Coloplast) to the irritated skin, then I pat on a (No-Sting Skin-Prep by Smith&Nephew) and let it dry. Looks like a glazed donut, it's called crusting. Just go easy on the powder and skin prep, a little goes a long way and make sure it is completely dry. Then I apply my flange like normal. Most of the time it clears up the rash by my next bag change. However, I only change my bag every third day, unless accidents occur, which is rare. Please ask you nurse about this before trying it.
I think once you have a stoma you become very aware of what you put into your body because when it comes out you can know about it. I'd been eating whatever I wanted and had a well behaved stoma. However since my surgery my out put has been irregular and I had alot of stringy material coming out, I had to pull it out of the stoma and help it along (not sure if this is the right thing), I think it was beansprouts.
I'm worried I have a blockage as today I've had runny output, very watery, but I only ate porriage and one slice of toast yesterday as I'd been up to the hospital. I don't have anyother symptoms like pain and as I've never had a blockage I don't know how it would feel.
Anyway my main question is what is the idea diet to keep everything in balance and good working order? What are the best foods and what is important to avoid.
Reno, I can only pass on to you the information I was given in the hospital. I'm still relatively new at this, I acquired my stoma last May. I was told to avoid things like nuts and seeds, unless ground up into a butter. Peanut butter is good, but not the chunky kind. No corn, popcorn, pineapple, or okra, too hard to digest. Tender, well cooked meats are good, avoid too much fat and grease. Garlic, or asparagus may cause odorus output. I'm concerned from what you just wrote that you may not be eating enough. Porriage and one slice of toast is not even a balanced meal, and certianly not enough on a daily basis to keep a person healthy. I do hope you are eating more than that.
Last May I went on vacation, little did I know it would be the most life changing vacation I ever took. Two days after arriving in SC I had my first operation. Part of my small intesnine had died due to lack of blood supply. Thought I was doing fine, headed back home soon, then had another operation. Lost more of my intesnine, and was given my little putt-putt, and a bag that hangs from my belly. Two weeks in ICU, then 2 months in an acute care rehab center. It was a hard adjustment, I was told it was a miracle I was still alive, and that most people with as short a bowel as me didn't do this well. I had a high output, jujunum colostomy. (Excuse me if I'm not using the exact proper terms to explain this) At first just getting a bag to stay on for long was a problem. Now the flange I use sticks for me really well. I finally came home, not really home, they sent me to a nursing home not far from my residence. At the time I thought I'd probably spend the rest of my life there. Then this doctor came in and she said "Let's see what we can do about getting you ready to go home." I said "Home......just tell me what I have to do to get there." It was September when I got out of the nursing home. At first it was difficult, going out in public, (putt-putt can make the most embarassing noises) due to the high output I can't go toooooo far from a restroom. There is also that embarrassing bulge in my clothing that no pants or skirt can really hide. I'm dreading summer, my bag is too large for wearing shorts. No swimming, and I'd just bought 2 new bathing suits. All in all I can't complain, I'm fortunate to still be alive. They say that God doesn't give us more than we can deal with. I say "What other choice do we have, you either learn to deal with what life gives you, or you lie down and die." I just keep on keeping on. I don't know what to expect next, and yes that does scare me sometimes, but I'll deal with it when the time comes. I just registered here. I had hoped to get in a chat room and dicuss what foods might give me problems, and why. I wanted someone to talk to that would understand my issues, but no one was in the chat room. Maye later.