Eight months have past rather quickly since the day of my life-saving operation to remove my diseased intestine. I couldn't be better! I've had my ups and my downs which could be expected but I'm now living life to the full. Previously I suffered from Crohn's disease but now the 'suffering' part has vanished. I'm perfectly normal, aside my ileostomy pouch.
I'm currently on placement with a large company that manages the trunk roads in Scotland, Bear Scotland. I'm doing Administration and I'm very happy there. They have been kind enough to facilitate my needs and place me on a training course (SVQ Administration) which will boost my C.V to a great extent. It's only a couple of months until I start temporary-employment, messy weekends expected!
Here's me and a close friend, I'm the one in the blue shirt.
New to the forum. Had an ileostomy on 12/12/2012 which is temporary. Having a rough time with it. Skin is stripping all over and ostomy bag won't stick at all. I have to change the bag several times a day due to leakage. Running out of options. Home health nurse discharged me but thinking I need the nurse back.
Any support, ideas, thoughts on how to get through this? I am an emotional wreck and feel embarrased to see friends or go out in public.
First meeting with my ostomy nurse after the surgery, the 16th of March. I’ve made a list with questions for her. I’m curious with the Irrigation procedure, when can I start?
I’m preparing to move back home again. I’ve lived with my parents since the surgery, but it’s not an ideal situation, I miss living closer to the city. So I hope I’ll be home during this week. But it stills hurts when I’m walking; it feels like I have open wounds in my stomach.
Mentally I’m down at the moment. I have mixed feeling about my new colostomy. I’m glad that this has given me a new freedom in many ways, but I just hate having a bag with poo on me. I think it’s disgusting. Sometimes I could just wish this was not my own choice, so I could just be angry with the surgeons and nurses when I felt like it.
Well it was 12 months on the 20th April since I had my little spouting friend installed. It has been quite a roller coaster ride. My current health status is 1. ileostomy is fine with little bag troubles (I am lucky with that). 2. Crohns active causing pain and possible cause of the partial blockages i currently have, mouth ulcers come and go depending on the Crohns activity. 3.Staph infection in the anal area which has not heals since original op, under treatment which seems to be working but slowly. I have returned to work again with a VAC pump on, luckily my work is good with my medical issues. My family are happy to have me home again after this last 8 week stint in hospital. I am really happy my wound is healing as the 1 and 1/2 hrs it takes to change it is a real pain in the butt LOL.
I've been thinking about starting a blog about life with my stoma, Squirt, but was concerned it might turn into a major whining session or have people respond by telling me how lucky I am and go into their saga or leave sympathy or hang in there comments. My goal is not to make this a pity party but to make info available. When I was healthier, I used to frequent ostomy forums and try to reach out to new or future ostimates to at least offer some support, but there's a lot of idiots in this world filled with rude and cruel comments. So I turned off comments and have no guilt about being honestly brutal about what it's like to be 38, and sick. . and sick of being sick.
I've been an ostimate on and off for 12 years and my current stoma is permanent as of 3 years ago. I know family and friends try to understand, but until you wake up in your own dookie or experience a bag/wafer blow out, you don't really get it. It happens and you move on. I'm used to Squirt but do wish he'd be better behaved. After 6 bowel surgeries I am left with short gut syndrome and on TPN--fluids only. I should probably be grateful for that, but it's hard to remember when I'm on an IV for 12 hours and seem to go septic every 6-9 months. The last episode just about a month ago and it seems the accompanying pneumonia and lung nodules may be lingering. Time will tell.
And in time, my tale will unfold.