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  • MarkP_AUS

    12 Months on

    By MarkP_AUS

    Well it was 12 months on the 20th April since I had my little spouting friend installed. It has been quite a roller coaster ride. My current health status is 1. ileostomy is fine with little bag troubles (I am lucky with that). 2. Crohns active causing pain and possible cause of the partial blockages i currently have, mouth ulcers come and go depending on the Crohns activity. 3.Staph infection in the anal area which has not heals since original op, under treatment which seems to be working but slowly. I have returned to work again with a VAC pump on, luckily my work is good with my medical issues. My family are happy to have me home again after this last 8 week stint in hospital. I am really happy my wound is healing as the 1 and 1/2 hrs it takes to change it is a real pain in the butt LOL.
    • 1 comment
    • 418 views
  • HildeAL

    ostomy nurse

    By HildeAL

    First meeting with my ostomy nurse after the surgery, the 16th of March. I’ve made a list with questions for her. I’m curious with the Irrigation procedure, when can I start? I’m preparing to move back home again. I’ve lived with my parents since the surgery, but it’s not an ideal situation, I miss living closer to the city. So I hope I’ll be home during this week. But it stills hurts when I’m walking; it feels like I have open wounds in my stomach. Mentally I’m down at the moment. I have mixed feeling about my new colostomy. I’m glad that this has given me a new freedom in many ways, but I just hate having a bag with poo on me. I think it’s disgusting. Sometimes I could just wish this was not my own choice, so I could just be angry with the surgeons and nurses when I felt like it.
    • 8 comments
    • 680 views
  • Scarlet Moon

    8/9/2012

    By Scarlet Moon

    I've been thinking about starting a blog about life with my stoma, Squirt, but was concerned it might turn into a major whining session or have people respond by telling me how lucky I am and go into their saga or leave sympathy or hang in there comments. My goal is not to make this a pity party but to make info available. When I was healthier, I used to frequent ostomy forums and try to reach out to new or future ostimates to at least offer some support, but there's a lot of idiots in this world filled with rude and cruel comments. So I turned off comments and have no guilt about being honestly brutal about what it's like to be 38, and sick. . and sick of being sick. I've been an ostimate on and off for 12 years and my current stoma is permanent as of 3 years ago. I know family and friends try to understand, but until you wake up in your own dookie or experience a bag/wafer blow out, you don't really get it. It happens and you move on. I'm used to Squirt but do wish he'd be better behaved. After 6 bowel surgeries I am left with short gut syndrome and on TPN--fluids only. I should probably be grateful for that, but it's hard to remember when I'm on an IV for 12 hours and seem to go septic every 6-9 months. The last episode just about a month ago and it seems the accompanying pneumonia and lung nodules may be lingering. Time will tell. And in time, my tale will unfold.
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    • 405 views
  • LesaMarie

    Hi everyone!

    By LesaMarie

    New to the forum. Had an ileostomy on 12/12/2012 which is temporary. Having a rough time with it. Skin is stripping all over and ostomy bag won't stick at all. I have to change the bag several times a day due to leakage. Running out of options. Home health nurse discharged me but thinking I need the nurse back. Any support, ideas, thoughts on how to get through this? I am an emotional wreck and feel embarrased to see friends or go out in public.
    • 9 comments
    • 544 views
  • crystal

    OMGoodness long time no blog

    By crystal

    I can not believe I have not blogged since 2011. Let's just say life got busy and lots of fun! I do believe that since my last blog I met the man of my dreams and got married on April 28, 2012. We had a beautiful church wedding and went on a Carnival cruise to the Caribbean for our honeymoon. Luck for us that was before the drama of the ship getting stranded in the ocean. We do love to cruise!! I also have a great niece on the way in September. I am so excited since it will be the closest to us having a child of our own. My wonderful husband had never really seen me at my sickest point yet, but I do know he will handle it in stride when my Crohn's does decide to rear its ugly head again. He has had to carry me to the ER on a few occasions and he did great (thank goodness if not I'd have to send him to the curb). I have been having some wonderful signs that maybe my wonderful remission just might be over for the time being. I have noticed the sed rate climbing and I really do not know what the next step would be. I am already on the MAX dose of Cimzia. I will deal with that when the time comes. Just always have the wonderful irritation around the stoma and ugly marks from the perstomal pyroderma. Oh well it is the battle wounds that make us who we are! Glad to be back! Crystal
    • 2 comments
    • 363 views

Our community blogs

  1. cjb's Blog

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    Recent Entries

    I have just been told I need a colostomy. I'm 55 male and have had a stroke in the past. I have been diagnosed with diverticulosis and have for past year been leaking from bowel. This has become a really difficult thing to manage. I have had tests at the Royal London Hosp and was told this week the inner muscles are not working at all and the outer ones have limited use. I also have nerve damage and only part empty the bowel.

    I am leaking all day and use pads. I also have pain from the diverticulosis which keeps flaring up.

    I have been told the problems are in main due to my stroke. I am really concerned about a colostomy, firstly about the op and secondly the colostomy itself. I am to use self irrigation till the operation. I take loperamide and membervine for the bowel.

    I'd appreciate any thoughts. Cheers!

  2. I went to see Dr. R. again today for follow-up. Now he's saying that in spite of the biopsy results, he thinks I may still have cancer. He says biopsies can be wrong and that sometimes they just don't get the right spot. My faith in the medical profession continues to wane. He was very attentive to my problems with eating and digestion, and the fact that I've lost another 11 pounds (since Jan. 3) is a flag for him. He's got me scheduled for another CT scan tomorrow morning first thing, then I'll see him for the results on Thursday. He says if the masses have continued to grow, that's a clue that they're probably cancer. If not, then...?

  3. RenofEngland
    Latest Entry

    blog-0182717001358184384.jpgI had promised myself that me and my 2 year old would make a snowman today. We only had a little bit of snow. But enough to make a snowman. We rushed our breakfast, wrapped up warm and were out in the snow by 8.30am. Although we were back in by 9.30am for a cup of tea. Too cold brrrrrrrr.

    She's gone to her Nanna's now, so we can have sometime to do jobs. We were supposed to be tidying the house before I go into hospital on Friday. But instead its turned into a lazy day around the log fire. I have a strawberry beer and pizza to look forward to this evening. I guess housework and packing my hospital bag can wait.

    It's one of those weeks. So busy with medical appts. We have the health visitor and physio tomorrow at our house. Baby has Erbs Palsy but I think the physio will give her the all clear. This is a condition where the nerves are pulled out of the shoulder at birth, due to shoulders getting stuck behind my pelvis. Some children can't move there arms and it can be a condition for life. But I think she's going to be fine with no lasting damage.

    Then we have someone from Home Start coming who may be offering us some help around the house/childcare while I'm recovering. Then the same day baby has to have her first injections.

    I think after all that I'll be glad to get a rest in hospital and put my feet up.

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    blog-0741103001357753383.jpghi all,

    I thought i'd share my story with everyone so people can get an idea of what to expect if in the same situation.

    In october 2010 i was diagnosed with ulcerative colitis at the age of 21 - i had it very severe indeed, going to the toilet about 20-30 times a day and losing about 2 stone in weight!

    As with all uc sufferers, i was put on medicated steroids which did help a bit but everytime i weened off them (it is not good for your body to stay on steroids for too long) my colitis would return. After 2 stints in hospital, one in novemeber 2010 and one in december 2010 (both stayed in hospital for 1 week) i was starting to get depressed. Due to being on the toilet all the time i could not work and so i was on work benefits.

    This carried on for months! during this time, the only enjoyment i got was playing football - due to the steroids, i was able to play football in the afternoons when the medication would kick in for the day and not to mention not eating any food that day. finally i decided enough was enough and after speaking to my consultant we agreed that my colon should be removed.

    Colon removal surgery

    This was a big decision for me; as you can imagine, no one wants a stoma and to wear a colostomy bag! I finally had my colon removed on 16th november 2011. The operation went well and there was hardly any pain at all post op. it does take time getting used to a pinky/red stoma poking out your body but you get used to it in the end. changing your bag becomes habit and very easy, believe me!

    From november 2011 to october 2012 this was my life - a colostomy bag stuck to my stomach. During this time i got my self a job and even played football for my local team. if anyone wants to play sport, but worried about your colostomy bag, take a look at www.stealthbelt.com this is a fantastic site from america which is run by a colostomy bag user. He makes discreet belts that look great even with your shirt off and help protect the bag from strenuous activities.

    I decided to have a reversal in August 2012 after another consultation with my surgeon. i was booked in and had the 1st part of reversal surgery on October 2nd 2012. This was to create the J-Pouch. in order to let it heal i have a loop ileostomy at the moment and am currently waiting for full take down, this should happen in the next 4-6 weeks.

    Please contact me if you would like more questions answered. my email adress is [email protected]

    If you would like to speak to me over the phone, that is not a problem too. my mobile number is: 07860930530 - leave a message if i don't answer and i will get back to you

    I know from experience, a one to one chat over the phone really helps you get an idea of what happens and what to expect..

    I hope this helps.......

    Russell

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    loisw
    Latest Entry

    I can't believe this happened. lol I was sitting on the edge of my bed, reading a post from Scarlet last evening and slipped right off the bed onto the floor. (I was really engrossed in what she had to say.) I can't get on my knees to get up because I have prosthetic knees, so I yelled for help. In came my son and hubby. My son got behind me and put his hands in my armpits, and my hubby got in front and pulled me up. It was quite a scene. How embarrassing is that! I must have bumped the night table on the way down because my ribs are achy today. I guess that's as good an excuse as any not to exercise today. Please don't laugh too hard.

    This too shall pass.

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    cairnsnomad
    Latest Entry

    This is the first Xmas I can think of that I haven't had it. Going to my son's place. Merry Xmas to all, hope it is a healthy one!! XXXXXXXX

  4. my scope results came in today!!! NOTHING IS WRONG WITH ME!!!!! I am so happy i can't stop smiling!!!! But , i have to drink somekind of nasty stuff that makes my pouch expand. :) :) :) :) :) :)

  5. gordon
    Latest Entry

    Hello all, how do I put a photo up on my profile? I've tried several times to do it, but it keeps telling me its too big.I've cropped it tried everything I can think of. any help would be good

    thanks

  6. blog-0488923001353331725.jpgMy last entry was all about my upbeat attack on the wee 3000ft hills that we in Scotland like to call mountains and how good it felt to do it within a year of getting my Ileo. I note there were one or two positive comments and I am very grateful for them as I still remember feeling fantastic about it ....back then.

    Two months later I was back inside at Raigmore being sliced and diced by the surgeons again because of problems that they say "may" have been made worse by the climbing excertion. Or caused by my attempt to redesign my garden, to grow and harvest some root veg, or just possibly, my re-introduction to the occasional round of golf after a 30 year break from the game.

    As usual, I can't do things the easy way :rolleyes:

    For some strange reason, every time I go in to have one operation done, I end up having to go back in within days, or occasionaly weeks for either another one or for a follow up in patient procedure. So why should this time be any different?

    It was supposed to be a wee routine thingy where they didn't even cut me open. The idea being that I could go in on Wednesday, they could mobilise and reduce my prolapsed stoma (it could reach 4 to 5 inches on full extension).

    I would be in and out within 24 hours and back at work on Monday. Hooray, a chance to finally get rid of some of those aggregated sick leave days I've been carting around for two years now. :D

    Of course the rest went as per usual. The op was succesful, I got a nice neat wee new stoma to replace the old sausage sized one, and after a check by the stoma nurse, while in the ward on the morning after the op, I was off home.

    24 hours later; my belly started to swell, the output started to slow down and eventually stopped all together and on the Friday night I was ambulanced the 35 miles back to the hospital where it was confrimed that I had Ileus for the second year running and would need to be tubed up and observed for 24 hours or so. :o

    At least they let me do my own NG tube this year. If there is one procedure I can honestly say that I hate more than any other (Except catheterisation !!) its having to have a tube up my nose and down into my stomach. The strange thing about it was that by doing it myself, I had control of when to push and when to breath and when to swallow and it went in much more quickly and comfortably than the last years. As of now, any time they need to NG me, I'm doing it myself again. :p

    With the NG tube came a tube that went up into the stoma to try and drain it from behind the abdominal wall but, after 24 hours, it was obvious that nothing was happening as I was just blowing up like an over inflated balloon. (no comments on my usual shape please!)

    So it was slice and dice time scheduled for Sunday morning.

    The bright side of this news was that I could probably have my parastomal hernia repaired and even get the whole thing re-sited off my waistband, where all my stomas (this now my 5th) have been located since the first emergency op 13 years ago, and placed lower down.

    Of course it wasn't that simple. ;)

    A different surgeon, from the one I'd had previously, did the op. He has created a real wee beauty of a stoma and the hernia seems to have been reduced somewhat for the moment.... unfortunately it's in exactly the same place as the others were placed. I also have the additional fun of having had hole placed on my left side and lower down as well... but with no stoma there!

    So what happened? Apparently, he had it already to pop into the new site when he found that the old scar tissue round the blood supply wouldn't allow him to stretch the bowel over that far. He tried his best but was concerned that if he'd placed it in the new location it would have withered and died from blood starvation. So he did the only thing left to do - tidied up the new wound site, popped the end ileum through the old hole and created a new, smaller and less proptruberant new pooper for me! B)

    The biggest problem I had, was coming to terms with the fact that my stoma is located for ever now, where I don't want it located.

    That, and the reaction to the anasthaetic, which had me hallucinating and haveing paranoid delusions for about a week while stuck in the High Dependancy Unit (HDU). Despite my insistance that the crayon drawings on the walls were always changing colour from pink to orange to green and kept moving about, and that the puppet factory in the next room was turning out too many pinochio lookalikes, the staff in the HDU were very patient with me and I'm grateful for that.

    Eventually someone got wise and changed my drugs. The resident pain specialist nurse tells me I did this hallucination stuff last year as well, I'd just forgotten.

    Ooops - I've rambled on again - who me? Ramble? :excl::icon_biggrin: :icon_biggrin:

    Anyway, I'm now six weeks post op, feeling absolutely as low as ever. :blink:

    Post op depression always affects me but was worse this time as my wife had an operation in a different hospital postponed, until three weeks after mine, and we are both in post op recovery now.

    The strange thing is, that I don't regret the climb or the views that glorious day back in August, despite any contribution it may have had to my situation !

    As soon as I get the all clear for strenuous excercise I'll be off again and the heck with the consequences.

    After three consecutive Autumn breaks in the surgical unit of my local hospital I might as well be prepared for a fourth season next year..... I may even get airmiles eventually! :score:

  7. It's no secret that I am VERY disillusioned with ostomy support at the moment; I'm left questioning why I am still running this site and the vast majority of my dissatisfaction with it revolves around the ostomy companies and the deterioration of manners on the internet. In this post though I'm going to focus on the company side of the dissatisfaction and how their interference is impacting on ostomy support.

    Ostomy companies: Without them we'd all be pooing into shopping bags, and so for that they are heroes. But ostomy products are very costly, there's a lot of money involved in making them, and considerably more is made in profit - for example a 60p - £1 pouch sells in boxes of 30 for around £60. Because of this companies like to "sponsor" events to make themselves prominent in the community so that their products can be bandied about at presentations and events etc in the hope that we, the customers, will start using them on a regular basis. And, of course, once a charity or association accepts the companies sponsorship money then they - the company - can start flexing their demanding-muscles and demanding things such as which other companies can be mentioned in the charity advice and the size of the mentions they get, and this leave me thinking of them more in the villain side of the coin.

    I don't know if it's the economy or what, but this year the companies have been a real pain in the ass, attempting to dictate terms and with that the passion of ostomy support advocates is being throttled and my own personal interest in the area is rapidly diminishing to the point of being practically burnt out.

    Some of the ostomy-related charity heads/leaders that I know agree with me that the companies heavy handed attempt to use sponsorship as a reason to do exactly what they say as being very depressing and emotionally upsetting. People such as myself as many ostomy-related charity volunteers and leaders just want to help ostomates in the best way possible. When the companies start flexing their muscles they are making it very difficult to do achieve what we want.

    In this post I'm going to focus on what one company has done to Ostomyland/me in the last month.

    Firstly let me just state for the record that Ostomyland receives ZERO funding from companies or charities. Neither is it a job, it's purely a hobby for me that I play around with when my health problems are controlled enough for me to do so. Any bills for this website are either paid from my own wallet, or in the case of large hosting bills I accept donations from the members who would like to donate towards it. I've always done this because I've wanted Ostomyland to keep 100% unbias. I want us to be able to recommend a product because we truly believe it will be useful for the person, and not because Company X, Y or Z has paid our bills and so we have to recommend their products which may believe are not the best available for the member. The main O'land blog website which has the lifestyle pages and news posts on it also has a fairly large section of manufacturer pages. None of those companies have paid for those pages, they have been freely offered and given to get as much information as possible on to the website for the reader to review and be aware of what products and companies are available. It's not an exhaustive database by any means but I include any company that asks for a page, or accepts an invite to have a page.

    Now, bearing all that in mind, what do you think about an ostomy-products company complaining that I give too much time to the "big boys" and not enough time to "us smaller guys". This company, by the way, has a turnover of £50m GBP in 2011, and over £8m GBP in profits and with over 400+ staff. So, its not a small company I'm sure you'll agree, at least compared to their UK competitors who are lucky to reach 12m GBP turnover, and in some cases even 1m GBP turnover - that's not profit, but turnover. I would consider them a mid-size company.

    This company has had 15 years of free features/advertising on this website. 15 years of member's promoting their products when they've recommended them in the forums. Not to mention all the news posts they've had this year, and the considerable mentions about their products or services on the main site this year alone. I've been waiting nearly a year for this company to send me an update to their company page. All company information is provided by the companies themselves, including updates to their pages. I welcome all news from the companies to post on the site, and if the company has any article ideas then I'll gladly try to write an article up that will feature their product as well as other companies. So, if there's more pages for one company than the other's products then it's because that company has taken advantage of the things I've offered them and this company has not done a thing for the site.

    Ostomyland features companies which are from the top of the company scale all the way down to the home start ups and lots in between. So I dispute totally that we focus too much on the large companies. Yes, the site features the top five companies, but if you look at the accessories section, and even the pouches section you'll see that theres anything from mid-range companies down to the bottom end of the company-size chart. Then we take a step down from there to feature ostomy cover home start up, whom get exactly the same offers of updates, articles and news posts etc as the largest of companies, and of course the complaining company.

    I should also point out that so far this year the company in question have had 8 pages of news posts or major-feature on a product of theirs on editorial pages in the last 8-10 months which feature many companies products. This is all information that I've had to source myself because in 15 years they've not sent me any information in which to help give them more features on the site. On top of this they've not showed any appreciation for the features they've had on the site so far. In 15 years I've not had so much as a free pen or an impromptu thank you email off them for the company page they've had running for the majority of the site's life.

    I'm drowning in promotional pens and items and bears from companies who have appreciated the news posts I've made for them, or the product mentions they've had etc., these are all items which I've not asked for but have been sent as a sign of appreciation of what I and the admins and mods here are trying to do for ostomates and as a result the companies. I've even been sent one of those insurance meerkets from one company as they knew I collected promotional toys and bears (Natwest Pigs etc). But I'm not in this for freebies. All I really want from the companies is a bit of understanding of my situation and be left feeling like what I've done has been appreciated.

    What annoys me most is that I replied to their email - which was sent at midnight on a Saturday night of all times, and was supposedly a first contact information from this person to a stakeholder website - but after nearly three weeks there has been no reply, it's been completely ignored. In it I re-offered the company everything they had been offered over the years and the same as all the other companies regardless of size have been offered in a friendly and welcoming mail as I thought the company was mad with me. I also offered to include a quote from them about ostomy company social networking which is the next article I'm working on. I've received nothing.

    As time went by I started to feel more and more upset and angry about what they'd had the nerve to say. If they were paying sponsorship to the site I could well understand their being upset. I even contacted my contact in the company to ask who this person was, I never got a reply to that either. Thanks to LinkedIn I know that this woman was the Head of Marketing at this company - her email didn't even introduce herself.

    And all this leaves me wondering, if they treat a website that has been giving them 15 years of free advertising and marketing like this, then how do they treat the charities and support groups whom accept sponsorship money off them?

    I'm disgusted with this company, and I'm very tempted to name and shame them. But I've given them one last chance to address this issue. I've emailed my contact with the full information explaining why I'm so disappointed and upset with them. That was Nov 14th and so far there has been no reply, which does not shock me. There's not even been an acknowledgement of the email. If I hear nothing then I am considering pulling the companies pages from the website because if they do not show me any support, respect or consideration, then why should I show them any consideration by featuring them on the website? However, I am agonising over that decision. If it weren't for the fact that it would penalise the ostomates by not featuring their products (as some of them are excellent products) then I would have already pulled them.

    The vast majority of companies are lovely and fully appreciate what we try to do here on Ostomyland. It's not a job, we do it in our free time, and it's something we're all very passionate about. So, when someone who works in the sector complains about the things we do it sickens me. They are doing this to likely just pay their mortgage. We do this because we want to help people. They are the ones being paid to market the products. Not us. We just want to stop people going through the things we went through. However when you get treated like this by a company you thought you'd been helping for 15 years it strikes a huge blow against your desire to keep doing what you are doing. Especially when you have your own health problems to deal with still. I've done all I can to help the companies over the last 15 years, but it seems it isn't enough. I think it's time I start planning my exit strategy from ostomy support and thus Ostomyland (ie me leave, but the site remain running), because when I'm laid awake half the night, upset and unable to sleep or shut my mind off thinking about the company bitching, the whole politics of the ostomy support world, and the declining manners of the internet and it's users (trolls etc) in general making running a website considerably less fun than it was even only 3 or 4 years ago then I think it's time I quit. I am genuinely concerned about the state of ostomy support and ostomy charity-dom because of the companies interference in general (not specifically the one I'm complaining about), and if things continue getting worse as they have done in the last couple years then I can see it destroying ostomy support as we know it. But ostomy support charities needs the companies money to pay for the services they provide. And therein lies the problem.

    </end-rant>

  8. Carebear18
    Latest Entry

    It's been a while since I made a post. The last entry was my venting on not wanting a permanent bag. Well I got my permanent bag two months ago and wanted to do a recap of how things are doing. I wanted to do updated here and there to track how I am doing and what I am going through. I hope this is useful to others that are going through this too, or are about to or who already have. I don't want to be a oh pity me or feel bad for me blog. I just want to be able to track things and it will be interesting to see if others are going through the same things or have been where I am.

    ​ OK so since my last blog again I have gotten my permanent bag and my Dr told me I would heal in 4-8 weeks so I told my boss I would be out of work for at least 4 weeks and that I would go from there. Now hearing 4-8 weeks was hard because I like most people can't go without working that long. I was lucky that when I heard I needed this surgery in June 2012 that I could push the surgery out til August 2012 allowing myself to juggle my bills and start saving up. So that was lucky for me. Makes me wonder how the people who don't have time to prepare do it. I was lucky that I have had a bag before when I was younger for two years. So I was not shocked about getting used to the idea of seeing a bag attached to my side or how to take care of it. I was lucky that my Dr could use my old site, so I did not need another site. I'm going to do a mini recap from the beginning.

    Surgery day I was told it would be a 4 hour surgery, it actually took 7 hours. I was in the hospital for 6 days. I was getting out of bed on the 3rd day and walking on the 4th day. Once I was home I had issues changing my bag but that was due to the system I was using, I needed a convex bag and I didn't have one and also because my stoma was shrinking in size so i was not getting a great fit. That was frustrating because I would spend 3 hours and 3 wafers later and still not be done. I felt like throwing in the towel til my stoma nurse found a convex brand for me and I have had great luck with. I went back to work 3 weeks after surgery and worked only part time hours., My 4th week I was back full time.

    I had my staples removed after 4 weeks. After 6 weeks I had an infection on my surgery site and it burst open. I think my staples may have been removed too soon, because now at 8 weeks my site has opened again in a different spot. So, now I am just waiting for those spots to heal and I am taking antibiotics to treat that. Besides pain meds I have not had to take any other meds. Take is a huge difference because before surgery I was taking 8 pills and a humira injection daily. Despite it being annoying to empty my bag about 6 times a day, its better than the 25-30 times a day I was going before surgery. Before surgery I couldn't handle a hour car ride, now its not an issue. The hardest thing was taking the step to accept this is what I needed and it wasn't the end of the world. Ever since I took that step my quality of life has done a 180. Not saying it was easy, I still get depressed looking down at my bag but I have accepted that I need to coexist with a bag. I find comfort in knowing I am not alone and remind myself it could be worse.

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    blog-0177859001350824190.jpgSix Thousand Angels

    Elizabeth is a twelve year old girl living the slum of Kibera in Africa, where over a half of a million people live in poverty. There is no electricity or running water. Her mother is deceased and her father works odd jobs to make a few shillings. She is fortunate to be alive, as many children die here before the age of six.

    The house she lives in is a mud shack. The ground is used for a toilet, bringing stench and diseases. Sewage runs like rivers of water through the village during the rainy season.

    Elizabeth can’t go to school because she must stay home and care for her younger brothers and fetch water. She walks quite a distance and must carry heavy containers. She sometimes has to pay for it, so she gets very little. The family goes without washing their hands or bodies because water must be used for drinking.

    Due the sanitary conditions, diseases like malaria and dysentery are rampant in the village. Both children and adults get sick and die. Medical help comes from outside and is scarce.

    Elizabeth’s four year old brother Dominick is dying. She hears a new clinic on the edge of Kibera has opened, so she literally carries him there. He has severe stomach trouble and is dehydrated. The child moans in agony as the doctor does all she can, but it is too late. God mercifully takes another angel home.

    Elizabeth sobs as she steps out of the clinic with her brother’s lifeless body in her arms, and sees a golf course with water sprinklers running over a lush, green, golf course. A high fence separates the rich from the slums of Kibera. Children, dying for water,

    stand outside the fence watching men play golf, and eyeing the water as it quenches the thirst of the grass. They do not understand.

    Dominick is just one of the 6000 children dying in Africa every day. 6000 a day! There is a global water crisis in this world many people are either unaware of or simply choose not to think about. We must do something to help!

    In 2008, Dick and Terri Greenly (co owners of Pumps of Oklahoma) founded a public charity called Water4 Foundation to provide water to impoverished areas such as Kenya, Ghana, Haiti and many others. They not only drill wells at a greatly reduced cost, they also teach the Gospel of Christ and get the natives involved by providing them employment opportunities and allowing them to become a part of a solution to their own water shortage problem.

    Please research The Water4 Foundation right now to learn more, and then, give! Even the smallest donation will help save a child’s life. These children are God’s most precious angels, and they need your help. You will be blessed many times over!

     

     

     

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    Recent Entries

    My stoma has blister-like bumps on it...What is this and is this normal?

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    Well i have just been to see the consultant and he says my new operation date will be in 8 weeks. Very, very nervous. But i must say he does not mix his words he stated the op i am having (Loop colostomy made into an end colostomey + Hernia repair+Bum stiched up and all the bits removed) There is a 1 in 300 chance i will die. So of course i thanked him for that bit off info OMG

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    Hello to you all. I think I am aiming for aworld record as I have had an ileostomy (ulcerative colitis) since I was 24 and am now 73!!!

    It has really not changed my life in any way - still done all the things I wanted to do. Yes, there were times of feeling down - expecially with the leaks in the beginning- mostly due to the horrible bags that were available in South Africa at the time.

    I spent 8 years in the UK and revelled in the availability of bags! In SA now you can get 10 bags a month from the government hospital - whatever type they have decided to order. And if they have paid the supplier which quite oftendoes not happen! So no bags :( - one just has to buy them. So to all new ostomates I say just hang in there - if I could make it so can you :) .

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    Hi Everyone. My names Trish Im from kent , WOW im gonna be 37 tomorrow. Ive had my ileostomy since 2007. {its permanant]. I have a condition called Hirchsprungs desease, which has led to my large bowel being disconnected. I also have slow transit bowel in my small which makes life awkward. Due to my medical condition i cannot tolerate much in the way of solid foods without vomiting. So im on alot of medication for anti sickness.

    Last year i suffered a setback with my health, i got a hernia which was causing constant blocking and sickness. I went to see my mum in Bedford Bedfordshire for the 1st time in 2 yrs, and collapsed. I was rushed into hospital and had emergency surgery, Cut from top to bottom, (BIGGEST SHOCK EVER) I was in hospital for 2 wks and 4 days. ronically spent my 36th birthday in hospital. Today is the 1 yr anniversary of my last op.

    Since then my confiance has taken a huge knock, something i coped and dealt with for so long, has now knocked me for sick. I now do not feel like a person anymore and have no one i can talk to about it that would actually undrstand. I no longer feel like a woman, just a mum. my confidance is nomore to the extent that i made it effect my marriage because i felt like no one understood. I feel ugly and low and tearful all the time. My youngest daughter was also born with Hirchsprungs and had an ilieostomy when she was 4 days old, but was lucky enough to be reversed. Shes now 9 , 10 in october and incontinant. She puts me to shame 100 percent. I love her dearly

    I was just wondering if anyone else has ever felt like this? as i feel at the moment that whatever i do, i feel no better. Im hoping to make friends with people with ostmies , that would mean a great deal as i have no one.

    Thankyou so much for your time

    takecare evrybody

    Trish

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    Quentin
    Latest Entry

    Hi, Just a quick question,

    Has anybody ever used Colostomy caps i have just ordered some, So i was wondering what were they are like if they work ok or not.

    I ordered them to enable myself to go swimming etc.

    Quentin

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    jambo
    Latest Entry

    Well,saw my stoma nurse today and got a lesson on how to irrigate. Up to me now ,so will use this space to give progress. Really hope my gut takes to this ,and also me.

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    Hello, I will be brief at my first attempt to write down about my ileostomy and after reading some of the other Ostomates accounts I feel myself lucky with what I experienced and come through to this present stage.

    I had my operation in late February of this year, an ileostomy with a fistula, which was painful for more than what I cared for and is only now beginning show what I was told by the consultants and surgeons to have a better benefit over the several years of toilet planning, which was unpredictable most of the time with its near misses and “O so close to the bog disasters”, then came the horrid flare up of my U/C. which ultimately led to the operation.

    I was told prior to the operation that it would be reversible in time, maybe six months but more than likely around two years time,. Also I would require a mucus fistula for what would be the remains of my rectum to prevent any infection occurring and this fistula’s output should reduce with time to possibly only a small amount. Per day.

    I have adjusted mentally and physically to this life changing adversity with what I think is a positive mind and with decent progress physically. Although I’m still being as positive as possible there was a spanner in the works which could have had a real bummer affect (pardon for the spoonerism), while thinking in a positive manner and having the prospect of the reversal to contemplate, the return to a normalish life admittedly with some shortcomings I’d be in a much better state of health eventually. However, the first visit to the hospital after the op, the same surgeon who performed the op informed me that after seeing the extent of the damage caused by the ulcerative colitis, he and his senior consultant advise, that I would be much better off by not having a reversal and to keep the ileostomy or stoma permanently. This was a complete shock to me as I never anticipated this, but as the short time has elapsed I have become accustomed to the not so happy prospect of it, more a reality of what nature throws at you. .

    Are there people out there with a similar sort of story? Have you also had a fistula to go with the stoma, which also requires a pouch or cap, which overlaps making for an awkward pouch changing time and does my belly look big in this?

    Look forward to hearing from you.

    Regards.

    Plasticpad.

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    Quentin
    Latest Entry

    Can anybody give me any ideas on how i can stop my pouch from smelling out is there anything i can buy?

  9. It is now 5th May and I am not feeling so great. My colostomy bag is up to its usual tricks.

    I have been watching my diet and it definately helps to keep my motions more or less stable. What has happened is that I find my bag fills up in the morning and early afternoon and then nothing until the next morning. That's great not having to get up in the middle of the night, but the downside is that often I am out and not able to get to a toilet in time.

    The other problem that I have is that often I have to rush to the toilet as suddenly I feel that I want to go normally. All that comes out is a little pooh and sort of slime. Is this normal. My doctor says that would happen, but now it happens sometimes 3 or 4 times a day.

    The bag that I have, seems to be the best of the bunch that I have tried, so will try and carry on with it. I do notice that if I am a little constipated, the pressure on the bag causes it to lift.

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    loisw
    Latest Entry

    I was just talking with a lady on facebook, and she said she has a rare stomach disease that has spread throughout her body. She's had many surgery, and she said she's dying. Her hubby gives her i.v.'s and she's on morphine. Boy, it made my problems seem small in comparison. I told her to come in here and maybe, just maybe, some one could give her advice. I didn't understand her comment. She must have been on the morphine. The poor thing.

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    Quentin
    Latest Entry

    Hi i am new to this so please be patient, I have had a stoma for 3 years now and i was just wondering if anyone knows how to hide the stoma site so i can wear t shirts etc in the summer I always seem to be hiding myself away all the time even if somebody comes into my home.

    Thanks Quentin

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    Hey guys! Just wanted to let y'all know that I've started an online support group on Facebook. You can check it out, post questions, stories, advice, or tips! Feel free to share whatever you'd like (but please keep it appropriate :-)). The website is: http://www.facebook.com/ItHappensSupportGroup?ref=tn_tnmn Hope to see you there!