These forums contain all the announcements we've made about Ostomyland. This includes: announcements for community matters; notification of new features/services; maintenance alerts; known technical issues and more.
Please post petitions, board-run polls, sponsorships etc in this section (and not elsewhere on the board - thanks).
We do not allow surveys about product research, or which are intended for business purposes. We're a support board, not a flyer catcher for business adverts.
Want to tell everyone the latest news on your health? Here's where you can tell us about tests or operations you're having, waiting for and the results. Maybe you want to let us know a member is in hospital? If it's health-related it belongs in here!
Everyone has a story about their health which lead to them being here on this board. So why not tell us your health story? Good or bad. You may find people who have through the exact same experience as you, and you never knew it!
If you have excess products you would like to offer to your fellow ostomates, or if you are after some more supplies for free or a knock down price then this is the forum for you! Please note:Any and ALL transactions are direct between the two parties involved and are at your own risk. Ostomyland accepts no liability for any loss or damages as a result of using our Ostomy Trades forums.
The company that makes my products has a wax ring, like a gasket you us under a toilet. It is molded to ft the shape of the hole in the gasket and sticks very well. Only problem is it sticks to the hairs when you take it off, lie a bikini wax I guess. Someimes I use an Xacto knife to cut the hairs as I remove the gasket. It is more work but the gasket will stay for five days.
I hope that helps.
So glad that I took the time to analyze and respond (on November 1st) to Narkor's desperate plea in a timely manner so that he would have some help in making his decision by November 22nd - His last visit here was November 1st so he likely hasn't even read it. Unfortunately, not the first such happening... Maybe the time has come for me to re-evaluate whether such is worth my efforts, general approval rating percentage (Likes to Posts ratio) notwithstanding ...
Just getting started with an Ileal Conduit that I had surgically inserted about a month ago. The nurses that I've been working with use stomapaste as part of the procedure for attaching the basic appliance to my body. However, the instructional videos I've been looking at (through You Tube) do not use this paste.
Is stomapaste in fact part of the procedure or are the nurses I've been working with making me go through an unnecessary - and somewhat unpleasant- step.
Thanks very much.
"20% to 30% chance they did not get all the micro cancer cells which are undetectable in any test. In order to prevent the 20-30% chance there are undetectable micro cancer cells from moving to my lymph nodes then liver and lungs, is to perform the surgery. This will reduce the 20-30% to 3%."
Okay, Please consider this and discuss with appropriate medical personnel if you are so inclined.
Removal of colon 5 cm from both sides of where polyp was removed reduces cancer risk from 20 to 30 percent to but 3 percent. Presumably, the 5 cm was chosen because after that each cm more is statistically insignificant for its effects when compared to the adverse other effects of that removal.
Thus, can a standard normal curve be fitted to the 10 cm interval, polyp removal site on centre? If so, you may find the statistical risk of leaving the absolute minimum on the anus side to keep a functioning sphincter and anus acceptable. Now, this will, no doubt, be a very delicate operation requiring a highly skilled colorectal surgeon but, if it were me, I'd be asking the questions. Note as well that, again statistically, the operation to remove sphincter and anus carries with it a 10 percent chance of rendering you impotent.
Tough call. You need to pull in all available resources to make your most informed decision. As to the qualitative factors, well, I had my total colectomy at about your age and I've learned not only to live with it but to flourish - Life is good. Good Luck.
I just joined. Currently my status is I have had a polyp removed and it is undifferentiated, and tumor budding is present. It is stage 1 adenoma carcinoma, a common cancer. The polyp was intact and it was removed.
The colorectal surgeon at our general hospital is recommending removal of 10cm of my rectum. 5cm above and 5cm below where the polyp was found. Unfortunately there is only 4-5cm too close to my anus so it means if I make the decision it is an ostomy bag for life.
I am very concerned and troubled by the decision I have to make. The way it has been explained to me is that my macro cancer cells CT and MRI tests are all negative.
The surgery is recommended as the polyp had two out of four markers that make it a high risk aggressive cancer I am dealing with. There is a 20% to 30% chance they did not get all the micro cancer cells which are undetectable in any test. In order to prevent the 20-30% chance there are undetectable micro cancer cells from moving to my lymph nodes then liver and lungs, is to perform the surgery. This will reduce the 20-30% to 3%.
I am struggling with a decision that is based on statistics more than facts. The fact is I do not have cancer. I might get cancer from micro cells if they were not removed fully.
Has anyone faced this type of decision before and how did they come to terms it? I am a 46 year old male, with 0 health issues and have not had a cold flu or any sickness since 2015.
I have till Nov 22, 2017 to decide, and I am leaning towards not doing it, but still unsure. I am currently researching life with an ostomy bag but really scared of what I am reading. Not sure what other info you may need but let me know. Thank you.