These forums contain all the announcements we've made about Ostomyland. This includes: announcements for community matters; notification of new features/services; maintenance alerts; known technical issues and more.
Please post petitions, board-run polls, sponsorships etc in this section (and not elsewhere on the board - thanks).
We do not allow surveys about product research, or which are intended for business purposes. We're a support board, not a flyer catcher for business adverts.
Want to tell everyone the latest news on your health? Here's where you can tell us about tests or operations you're having, waiting for and the results. Maybe you want to let us know a member is in hospital? If it's health-related it belongs in here!
Everyone has a story about their health which lead to them being here on this board. So why not tell us your health story? Good or bad. You may find people who have through the exact same experience as you, and you never knew it!
If you have excess products you would like to offer to your fellow ostomates, or if you are after some more supplies for free or a knock down price then this is the forum for you! Please note:Any and ALL transactions are direct between the two parties involved and are at your own risk. Ostomyland accepts no liability for any loss or damages as a result of using our Ostomy Trades forums.
I am writing to ask if you could publicise our new group on Facebook. We are a group of people who have for many different reasons ended up with 2 or more ostomy bags often because of cancer, nerve damage or trauma. We are raising awareness of urostomy users and people with 2 or more Ostomies. We have named ourselves Double Baggers. Both Urostomates and people with multiple stomas as groups are little known and face unique medical and social issues. Rachel Jury also writes a blog called Rocking2Stomas where she discusses all issues surrounding having two bags. We are also promoting having better body image in an age where women with perfect bodies get body shamed. Men and women who have ostomy bags often feel ashamed of their bodies we are using the analogy that our scars are part of our road map of life and we should not be ashamed of them. We see ourselves as survivors of our diseases and are promoting having a good body image despite having to wear ostomy bags or/and scars.
We would really appreciate if you would make our grour known to your members we would greatly appreciate it. We are starting a campaign to raise these issues and need input from as many double estimates and Urostomates as possible. We are based in the Uk and have members from all over the world. We have only been live as a group for a week and have 62 members already. Please come and have a look and tell us what you think.
Thank you for reading this message.
I realize I am a few months behind on this topic but my husband had a fistula caused by a tumor in colon that grabbed his bladder and his colon & bladder both burst from this. We were finally able to coordinate our surgeon with an urologist to tackle this 9-10 hour surgery and we now have a permanent colostomy. Actually, this is temporary because we had to have a revised surgery to repair a dead stoma, a dying colon & we are awaiting an ileostomy as soon as he can live through another surgery. We had an ileostomy in 2012 that we had taken down but we have always used Saran Wrap to cover him. Since we don't know how long it will be before the next surgery, I haven't ordered anything permanent but there are belts, etc you can order. Since I don't know about his weight later on, we are using Saran Wrap until we eventually know what apparatus to order. Our 1st ostomy we knew would be taken down so we just wrapped up. Works very well.
The stomagear link is: https://www.stomagear.com/?gclid=CL_LooKjzNMCFQO5wAodXJgNng
In keeping with that link, for the purpose of showering, what if you were to buy an appropriately sized plastic container, cut it to shape and cut slits in it to accommodate a D ring belt being passed through it, pad it and waterproof it next to your skin (top and sides) by affixing one-side adhesive foam weatherstripping to the container perimeter? Maybe an easy, quick and cheap DIY solution?